The silly season and Fibromyalgia 

I wanted to share some of my tips for surviving Christmas with this condition.  In the sat I’ll be honest I’ve been a right miserable sod as I focused on what I couldn’t do not on what I could do or asked for help!!

If you choose to drink alcohol then don’t expect to have a healthy Christmas, I am going to be brutally honest, alcohol and fibro go together like chalk and cheese.  It’s seriously bad for you, your mind and your body, your already oversensitive nervous  system will make you pay, here’s what happens to me:-

  • Palpitations
  • Overheat or am freezing
  • Numbness in parts of my body
  • Pins and needles
  • Panic attacks
  • Confusion
  • Insomnia
  • Diarrhoea 
  • Indigestion
  • Pain under arms and on my upper stomach when touched 
  • Depression
  • Anxiety

I am sure they are more!!  I used to be able to drink shandy but in the past month I cannot.  It’s your choice but ask yourself why you do it if it makes you feel ill?  Peer pressure, don’t want to look a party pooper?  Personally I’d rather feel healthy.  Do your research on google 

Okay let’s go onto the second thing that affects fibromyalgia; food.  Many of you might not have made that connection but I have my keeping detailed food diarys, food affects our nervous systems in more extreme ways than a person without this condition as we have sensitive nervous systems.  Not only does it affect my nervous system but I now have an inflamed bowel that I am having an exploratory operation for next week, it really is not worth eating shit food or drinks!  Okay here’s some of the food that affects me in a negative way and I’ll give you a few symptoms of what it does to me:-

  • Red meat
  • Cows milk
  • Alcohol
  • Coffee
  • Sugar
  • Anything containing sugar; cereals, dessert, chocolate etc
  • Cheap takeaways, fast food such as McDonalds, KFC and Chinese takeaways
  • Too much chilli 🌶 
  • Fizzy drinks
  • White rice 
  • Pasta
  • White processed bread
  • Processed, packaged cheap food that contains chemicals
  • MSG (found in many foods; Chinese chemical that enhances the taste buds in humans)
  • Too much cheese

I am sure there is more!!

I am not a saint, I’ve slipped up this Christmas, wanting to join in with my colleagues and friends at work, who have been absolute stars ⭐️ I’ve eaten canteen Xmas dinner, been out for s meal and ate red meat and had 2 shandys on two occasions and boy have I been ill, not just with fibromyalgia but also my inflamed bowel has not reacted well to the ‘crap’ food.

I’ve had to take 2 tramadol each morning and I have gone hit more than 3 days and I’m afraid that my body is now needing it to feel normal.  It just goes to show how dependant our bodies get with these pills, the pain from fibromyalgia is extreme, I know that.  But I need to get my nutrition back on track and wean back off these stupid tablets.  One thing I won’t do no matter how ill I feel I will not take more than 2 a day!!

Do not let your condition get you down, it can be controlled, you have to stick with the plan!

Struggling with Fibro symptoms each month!

Wow today has been rough.  I usually have to deal with the pain with Oramorph but I’m resisting this month.  I’ve stuck to co codamol and Tramadol, the first 2 co codamol has done nothing this afternoon, I’m  hoping the Tramadol works.

I’m on my 4th hot water bottle today and the pain is bleeding through.  I know this won’t last, the first 48 hours are always rough, then the remaining 3 days I can deal with.

I did not get anything much done at work this afternoon as I could not think straight, so I came home.  I’m hoping an early start tomorrow will be just the ticket.

I was reading on the Internet about options for this as it’s not something women with fibromyalgia talk about much, but we should.   In particular ones that are coming up to menopause age, I’m 41, my mum was 38! Anyway there isn’t much advice apart from going back on the pill! Ah no thank you.  I am not putting more crap in my system.  No I’ll stick with my yoga (I did it last night), my hot water bottle and the odd painkiller.  Read here for more details.

When I feel this much pain I hate this condition, it’s as painful as the start of contractions in childbirth.  But from under taking mindfulness meditation I know it will pass, it’s not a permanent state.  Things will get better.

Negativity hit me like a cricket bat in the face

I did not sleep well last night.  I got less than 3 hours due to having a sore throat all night.  I went to bed, got up then went back to bed late!


I stocked up on throat supplies and took them to work 😂

I went to work and it was very busy, I hardly had a minutes peace to myself, but I enjoyed it and it kept my mind off the pain.  

I completed a 30 minute mindfulness yoga meditation on Monday and my back, each side of my body were sore after this and in Wednesday my daughter rubbed magnesium spray into these areas and they were swollen?!?  But it felt much better.
After spending 24 hours in London with my backpack my back pain has reached epic levels.  I cried on the train on the way home yesterday so had to pop sunglasses on and take 2 Tramadol, I resisted for an hour but I literally could not keep my legs still and I was sat at a table with 3 other people, I hated that I relented and had 2.  The pain relief took about 20 minutes and 3 mindfulness meditation sessions on my phone using earphones to get me to a point of delirium.  I went from crying to giggling, yes I think my new train mates thought I was mental.

The pain moved into my entire body today and as I was at work I ended up taking a Tramadol this morning and 2 cocodamol in the afternoon and grrrrrrrrrr tonight I took another 2 Tramadol.  I was laid on the sofa crying as my back pain pulsed and my skin hurt to touch, my throat feels like I have 3rd degree burns in the right hand side and hurts all the way into my ear 😓.  I was literally crying and eating food at the same time, I could not even make it to the kitchen table.   My husband came over to give me a cuddle and told me to go to bed for a while if I felt that bad.  

I will not go back on regular meds and I know I will feel rubbish tomorrow after all the pain pills today!! But shit happens and I’ll get over it.


He knows what I was thinking and yes I threw an almighty pity party.  “Why me, I hate this, I can’t stand the pain, I’ve got a busy weekend I can’t afford to have this again right now”.  He always remains positive, “Maz” he says “you’ll be fine in a day or two”and that was all it took as I answered “yeah I know”.  Normally I would be griping, no I won’t, my life is ruined and a load of other negative stuff. But he’s right, I will be okay, it’s just my body’s way of saying hey you are a little sore from travelling and yoga, let’s take it steady tonight, this will not last as pain changes by the minute, it isn’t static.

I know the retraining of my brain is helping, the mindfulness is helping me focus on the now and not the past or trying to sabotage the future with pain I may not feel.  Let’s take it one moment at a time!!

So now I’m in bed, sat upright and cross legged, having had some magnesium spray on my back from my husband, this stuff is awesome, I make it myself.  The aches subside and I’m ready to do some meditation with a smile on my face.

Travelling at work. Massive fail

Well I’m sat on the train on my way back from London.  It’s a 2 hour train ride and a 15 minute bus journey to the 2 London offices.  It’s only Tramadol that’s took the pain levels from 8/10 to a 6/10.  My whole lower spine, upper back and shoulders (where I had my rucksack) right hip, groin and leg are hurting real bad.  I also feel like I have flu as I have that achy feeling all over.  I felt my stress levels increase as I sat in the train as I was in so much pain, I also felt the stress increase the pain in my back.

Mindfulness has taught me to concentrate on the ‘now’ I mean this will pass, just let the negative thoughts come and go and scan my body and surroundings and enjoy the moment.

I undertook 2 mindfulness sessions on my headspace app as it doesn’t need Internet access so dodgy train signals won’t disturb me and my stress levels have reduced.  The Tramadol has took the edge off the pain and I’m enjoying writing this blog, looking at the sunshine and the fact my dad is collecting me in an hour with my daughter and hopefully my mum.

Tonight will consist of rest, heat and my daughter will warm up my food my husband has left me already cooked in the fridge as he is working away.

What this experience has taught me is that I am not yet strong enough to travel to London but 4 months ago I did not have the strength to even contemplate it.

So when you have a bad day remember how far you’ve come and let it guide you to where you’ll be in another 4 months. 

Medication and Fibromyalgia

I promised you all a list of the medications I have tried to help with with my Fibromyalgia symptoms, bearing in mind it took 2 1/2 years to get diagnosed, what I will also give you is MY opinion of the negatives vs positives of these and side effects, remembering we all have similar symptoms but we are all different and no two people are exactly the same. So please respect my run down as this is personal to me.  

I do believe Fibro can be controlled but my degenerative disease and Spondylothesis cannot, with that said I do believe I can slow down the spinal degeneration, after all it’s my body and it reacts to my mind.

Here goes, please bear in mind in other countries some of these drug names are different so please look them up on google 😘:-

Co-Codamol – good short term medication for pain, gives feeling of well being when first started and created intense constipation and sleepiness.  Physically addictive and must be weaned off as make you feel like you have flu.  Made me grind my teeth.  

Tramadol – best painkiller I have ever used, make you feel absolutely out of your head when you first use and driving or working was impossible.  Worked very well but became immune to effects after long term use.  Weaned off too quick first time and felt like I was dying, hallucinated and felt suicidal.  2nd time I weaned off them I did so very slowly over 2 months and coped much better.  I now take 1 occasionally and hope to never use long term again as physically very very addictive.  Caused dry mouth, confusion, daydreaming, constipation and intense itching to start with.

Lyrica – not a bad medication but gave me  bad brain fog and concentration issues. Did not work as well as Tramadol.  Asked to come off them as affected my work.

Gabapentin – worst medication I have ever took in my life and I would never take again.  Pre operation they were quite effective but after developing Fibromyalgia they were awful. I felt suicidal, brain fog was so intense I could not even remember my own date of birth, struggled to hold a conversation and as doses were increased was severely depressed and was scared to be left alone.  I wouldn’t give this to a Fibro sufferer as there are much better treatments out there.  I didn’t realise how bad they affected me until I stopped.  Yes nerve pain has increased but at least my mental health and memory are very good again.

Amitryptyline – a very good tablet to help with insomnia.  But again I am physically addicted to them so having to take 2 months to come off them.

Oramorph – brilliant short term painkiller for extreme pain; PMT and migraines.  Not to be used regularly.  

Citalopram – a fantastic anti depressant, this tablet not only helped me cope with recovering from major surgery but helped with pain relief as it lifted the black cloud that hung over me.  But very physically addictive, still weaning off these and it’s been 4 weeks now and I’m down from 20mg to 7.5, down to 5mg this weekend.  Again cause dry mouth, brain zaps when you move your eyes, lucid dreams and increase anxiety for the first 2/3 weeks.

Duloxetene – cane off this as the lucid dreams got do bad I could not sleep.  Now I don’t think this is a bad medicine at all but again you have to be weaned off with your doctors supervision so quite frankly I don’t want to take this and let it affect my already fragile nervous system and brain!

Diazepam – great for muscle spasms and panic attacks, not effective for long term use.  You can be affected when stopping and weaning must be done slowly.

Zopiclone – brilliant sleeping tablet but probably the lost addictive on the list as long term use will stop you from sleeping normally when you stop worse than any other sleeping tablet I’ve tried.  I still use these and take 1 a week, for example if I sleep for 1, 3, 3, and say 2 hours on 4 nights I become exhausted and risk an accident on the road or sick leave at work. Bi take a zopi and can get 5-6 1/2 hours sleep in one night.

Laxido – to combat Tramadol and co codamol constipation.  One sachet a day works very gentle and is a life saver, but any laxative no matter how mild is not good for long term use.

If I think of any more I will share.  All these tablets mask symptoms we suffer withFibromyalgia and  what I want to do is treat the symptoms and reduce their affects on my quality of life not just mask them with more pills.  ALL these pills have side effects and have created other issues. All these pills affect our nervous systems and that is why I am completely coming off them.  I will keep you posted as to how I get on 👌

Please read this link for more information on any of these pills and for my USA followers you will see the other brand names.