There is a positive to Fibromyalgia 

I haven’t written on here for a while!  I don’t think the excuse I have is a good enough one but I’ll explain.

I always try to look for a positive in every situation no matter how ‘shit’ 

2 weeks ago I was awoken in the very early hours of Saturday morning with a deep pain in the lower right hand side of my abdomen.  It remained all weekend, I had no energy and late on Sunday my bladder felt like it was going to explode and I needed to urinate every ten minutes or so.  Sunday night I did not sleep at all and I rang in sick Monday morning.  I remained off sick on Tuesday too and I didn’t feel any better.  I went into the doctors where I was given a water infection test but it returned negative and the 3 days worth of antibiotics did not make any difference.   On Wednesday I attempted to go to work but on my return home I telephoned the emergency doctor as the bladder pressure worsened and my stomach was swollen.

I managed to get an appointment at 9PM my neighbour gave me a lift as my husband wasn’t home.  The doctor wanted to me to attend hospital with a suspected appendicitis. I was admitted at 11pm and taken to a ward at 2.30am with a very swollen stomach.

I spent the next 6 days in what I can only describe as hell!  Treat like a burden, over stressed nurses playing god with pain relief, generally backbiting at patients and at times being abusive.  Yes I did complain to the nurses and the matron.

The doctors were supposed to give me an emergency scan, I got one, after 48 hours, then it took another 3 days to give me a cat scan with dye injected in my arm.  Because I was on morphine I was full of gas so it was difficult for the ultrasound to work and the interval ultrasound only worked as I had to press on the top of my stomach and it was then we spotted a cyst on my ovary.

The Gynaecologist wouldn’t touch it as she said it had to be over 5cm even though I was in agony, my bladder affected, my bowels too and I only slept 5 hours in 6 nights total.  I was made to feel  like a hypochondriac and sent home with a one week sick note and a massive bag of tablets.  Then 2 days later I got a 2 week dick note and the reason was the cyst, ha so I wasn’t making it up!

Now I know I’m lucky as I’ve got private Heathcare through work and whilst I was in hospital I managed to get hold of my pain consultant who had treated my right SI Joint with injections. He confirmed he had suspected I had endometriosis and introduced me to his friend a private Gynaecologist at Thornbury where I had my fusion.  They squeezed me in the day I got released from hospital and I am now booked in for a colonoscopy to remove the cyst and anything else that shouldn’t be there.  Screw you NHS.

Now if I didn’t have fibromyalgia I probably wouldn’t have felt what was going on inside me for quite some time, I take it as a blessing that I am able to get this treated early and that’s my positive of having fibromyalgia! 

Plus don’t let the doctors gob you off and put every ailment down to Fibromyalgia you know you’re body better than anyone.


Chemicals and stimulus in Fibromyalgia

I am an avid researcher, when I suffered with spinal deformities I researched it to death knowing I needed a fusion even before it was proven with an X Ray/MRI as I bent in unusual positions and images were took of my lower spine.

I guess if I’m being honest I knew I had Fibromyalgia before I was diagnosed and I knew it was my twisted spine/operation that brought it into my life.

Since researching this and keeping diaries of physical and psychological changes I have absolutely no doubt they we are super sensitive to chemicals and stimulus:-

Heat, cold, weather changes, stressful situations, noise, medicines and drugs like caffeine, nicotine, alcohol and all the other crisp our doctors tell us to take ‘it will help you’ paaaah no thanks!!  Exhaust fumes and deodorants!  I hate them, any chemical we put near us or in our bodies!!

But what about food, drinks, products we use every day?  Have you ever ate ‘crap processed food’ for a few days and noticed how it makes you feel?  I have.  It disturbs my sleep, my concentration, my digestive system and my moods 100%.

I don’t drink alcohol, I have 1 coffee before 8am and I try to eat as natural as I can, check out some of the contents of something you put in the oven or worse the microwave, I’ve never heard of these things and would certainly not add them to home cooked food.  I’m not scare mongering but when our grandparents were little food was healthy, natural and home cooked and didn’t contain chemicals or additives read more here.  Is there any wonder more and more people are getting obese or ill and with Fibromyalgia I beg you to check out what you put into your body.  Would put crap into your car?  So why our bodies?

I have followed an 80% 20% rule for about the last 5 years of eating Paleo.  As near to natural as possible, in other words we use fresh veg, meat and fish as often as possible with a few wholewheat additions.  We batch cook and store in the fridge/freezer for when my husband is away and make our own TV dinners but it all goes in the oven.  The microwave has gone in the bin.  I lost a stone in weight from my Underactive thyroid by learning how to cook, not use ‘stuff’ ladened with chemicals.

Here’s another example, I just took a bath and checked out my body scrub and shampoo and conditioners 

What is that all about? Time for some changes I think.  You may think I am being over the top but ask yourself one question would you buy these chemicals off the Internet and eat or rub them on your skin? Of course not.

It’s no secret Fibromyalgia is affected in a negative way by chemicals and stimulus so if we cut them down or ideally eliminate them would we not feel much healthier and well normal?

Quite frankly I would try anything and I am it’s all going in the bin and I’ll see what else I can use.

Read here for scientific studies of chemicals/stimulus affecting Fibro