Diagnostic diet part 2 and Fibromyalgia 

As promised, I would send you an honest update on how my diagnostic diet is going.  I started before I spoke to the consultant and completely ditched all processed food, so nothing came out of a packet.  I lost 7 lbs in 2 weeks and felt so much better; less fatigue and reduced muscle pain.  

I went into the diagnostic diet for 2 weeks to cut down my diet to a very basic bland hunter gatherer type.  This basically removes all potential foods that could cause a reaction with my nervous system.


You only eat the highlighted foods for the first 2 weeks.  You track your symptoms and at first you feel worse; giving up coffee gave me a migraine.  I lost 12 pounds in 2 weeks!!  

After the first 2 weeks my daily headaches disappeared, my fatigue was reduced, my muscle pain went away and the nerve sensation issues I had like tingling, itching, pain upon touching disappeared.  

I was just coming out of a flare up when I started the diagnostic diet and my sleep was terrible; 7 hours over 3 nights.  I asked for 5 days worth of sleeping tablets and usually they take my sleep from 3/4 hours to 4/5 but this time they worked great.

It took about a week to get over stopping the sleeping tablets (this is why I don’t like to take them)! Now I’m sleeping much better, deeper and longer 5/6.5 hours. 👍

Switching to fresh food only I lost a total of 1 stone and 7lbs in a month and never went hungry.

My moods are better, less extreme and my menstrual cycle was less severe.  I haven’t had digestive issues either.

The next phase of my diet is to slowly start bringing in the rest foods not highlighted on the photo above, one by one and track symptoms.

So far I’ve been able to eat asparagus, grapes, veal, tuna steak and tomatoes.  

I’m still not able to exercise until I’ve finished the next month as this could skew the symptom tracker.

I can’t wait to restart proper exercising as I’m so weak, getting out of breath walking up hill or up or down steps.  I couldn’t even keep up with my 67 year old dad!

It’s not easy as you have to have willpower and you have to track everything; symptoms and weight, which will start to increase if my nervous system reacts to it.

I have a comprehensive stool analysis kit to do and send off but I need to wait till I get paid as it’s £160 for the analysis; 3 collections and I have strict guidelines to follow including mixing with liquids, dealing and posting lol.  I have a list of other tests to do too that I have to pay for as the NHS has refused, simple blood tests.

I am willing to do anything to feel better and the Airedale Allergy Clinic here have done more for me than the NHS have in over 3 years.  The NHS don’t have the funding or support to investigate or locate cures for conditions like Fibromyalgia.  The US are way out front in this area as it’s about making money and a cure or even medications or treatments would rake in millions.  GPs are trained to give us meds and there aren’t any specialists only pain or arthritic specialists available in the UK, we are sent to these for more band aid treatments for our symptoms.  What we need is locating and dealing with the root cause!! 


Feel free to ask me any questions!  Or join my page here for more insights and research sharing.  

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My first consultation at Airedale Clinic

Airdale are a private clinic that specialise in finding out what chemicals and foods affect our immune systems and cause medical problems, treating the root cause rather than masking the symptoms with medications.  You can read more about the great work the clinic do here.

When I was tracking my symptoms with a log I found a number of things that affected my symptoms of fatigue and stress:-

  • Sleep deprivation
  • Stress
  • Over doing things
  • Food and drink
  • Chemicals 
  • Hot weather
  • Dehydration
  • Injuries and other painful medical conditions

But some of these things affected each other too, for example certain foods affected my sleep, an injury affects my fatigue etc.

The first consultation was done over Skype to reduce my need to do the 1 1/2 hour round trip to Keighley which I would not have been able to manage.  It was with the Co-Director Dr Apelles Econs, lovely man, very caring and understanding and very knowledgeable about autoimmune disorders and allergies.  He gave me a frank explanation of how fibromyalgia works and affects the nervous system and what can be done to improve symptoms.  I have attached my treatment plan for you to review below:-


I want to share my journey with you to allow you to see what I am trying and what improvements I have.  There is no cure for fibromyalgia and the NHS are only interested in giving us pills and potions to band aid over our symptoms, not to treat the root cause.

The initial consultation was £175 but you can’t put a figure on good health.  The GPs only know how to prescribe meds or do referrals to specialists, but in the UK there aren’t any for fibromyalgia.

I recently had a bad flare up due to injuring my knee falling off a motorbike in training, I actually fractured my knee and again it took 2 months under the creaking NHS to find this out, as I had to wear a leg brace for a month restricting my movement the immobility flared up my fibro and back pain to the worst levels I’ve ever experienced.  

My healthy diet lapsed due to laziness and I put on a stone in weight and felt dreadful.  You are what you eat after all.  I gave myself a kick up the backside and ditched the processed foods and lost 7lbs in 3 weeks, since starting my diagnostic diet as recommended by the Airedale Clinic I’ve lost a further 3 pounds in the last 5 days.  At first I felt lethargic, had bad headaches (gave up coffee), could not sleep at all and my aches and pains got worse.  But I’m now on day 5 and I’m feeling a little better, I was in another mini fibro flare up due to overdoing things at work but I feel the diet is helping me recover quicker.  The only problem I have right now is very bad lower back ache which is hurting every time I remain still, especially when sitting and it’s worse when I lay down.  The only foods I can eat are detailed below, highlighted:-


The diet helps to detect whether food is affecting my condition to track how I react to the natural diet. It is only for 2 weeks and quite frankly I would do anything to feel better, even as one person put it yes I would sell my soul.

This is one of the pages out of my diet book:-


I have also obtained my full list of tests and results to share with the clinic from the NHS and I have a list of potential tests should I want to go ahead with them privately:-


I have ordered the stool test to start with until I know whether I have had any of these on the NHS, which I doubt as the NHS wouldn’t treat the outputs of most of the above tests.

I have a follow up consultation on the 11th to discuss how I’ve felt the diet has gone and discuss next steps.  Thankfully sebsequent consultations are only £90.

I have bought a vitamin B12 spray as this vitamin can help with fatigue, aches and pains, the tablet form is not adequately digested by our systems, but the spray works best, the gold standard are vitamin B12 injections.


I will update you on my progress with honesty and complete openness.  Maybe there is something I am doing that you would like to try.

Please feel free to ask me any questions, my Facebook page is updated on a more regular basis and is available through my blog.

Trial patient for Fibromyalgia 

After the initial bad couple of years with trying different medications with this condition and feeling disgusted with just constantly being fed more pills.  I wanted to try to put this ‘situation’ to some good use.

There is not a cure for #fibromyalgia and as the nervous system and mind are so complex and every single person is different I doubt there we will be.  But what if a combination of holistic and medical treatments were available to improve our symptoms and more importantly quieten down the root cause; our ‘short circuiting’ nervous system and brain?

I spent an afternoon searching on the internet for clinical trials in the UK and came across this site here, you can search the medical condition and even an area of the UK and see what is available, sign up, contact people for more information or even just ask to be kept informed.  Brilliant I thought!!  Let’s get involved, I’m game. 

I was turned down for one as I had took Tramadol in the last 6 months and one had no funding to pay for my travel, but I was accepted for another.

I am just waiting for a date to travel over for the one day trial and they have offered to pay for me to travel and my time plus I can spend some time with a Fibro specialist to talk about anything I want.  Fantastic…..

I will keep you all posted, but why don’t you take a look at the site and see what you think? 

Mindfulness course run by the NHS

Yes that is right.  I asked the doctor to refer me to a Psychologist as I was struggling to understand why my mind was acting like it was, clearly not understanding how the nervous system works or how it controls the brain at this point I was sh@t scared of my thoughts!  It was the best thing I ever did, I spent 90 minutes crying my eyes out and felt wretched and he didn’t tell me anything I already knew but he offered me 2 things:-

  • A mindfulness course running over an 8-10 week period
  • Counselling

I accepted both.

To cut a long story short counselling was out of the question as I was either the wrong age group or my condition didn’t have any counsellors, I could be placed on a waiting list but there was over 400 people on it.  Seriously!  But I was offered a chance to become one myself.  What a great idea I could become a Fibromyalgia counsellor but I needed to concentrate on myself first.

I did get a place on the Mindfulness course and started today.  I have been lent a book to read :-

I have homework yippee!!

I also met another lady with Fibromyalgia!!

I have done lots of research into Fibromyalgia and by no means am I a doctor but I’m also not stupid!!  Pumping someone with a nervous system disorder does not cure the illness it’s just a way to mask the symptoms.  Now what if I could get the symptoms under control and happily healthy life without resorting to pumping myself full of medications that well, affect the nervous system, using a holistic approach, after all holistic and homeopathic medicine has no side effects?

This is where Mindfulness comes in.  You can read all about it here.  We can train our bodies to become stronger and cope with tremendous amounts of pain but we just ignore our brain, the mind, our mental health.

Mindfulness is easy but it takes practise and dedication, it isn’t a quick fix.  Did you know that the brain can release chemicals that are stronger than morphine called beta-endorphins, don’t believe me then research the science here.

Why don’t more of us that suffer one of the primary symptoms of Fibromyalgia; chronic pain use the power of our brains to deal with the pain?  

Because it takes knowledge and practise.  Trust me I know.  I have to take Oramorph for a headache or it ends up becoming a migraine and I end up in A&E!!  But what if I could use my brain and mind to help me cope with the pain or better still, control the Fibromyalgia in the first place?  Well that’s why I am on the mindfulness course.  

Of course Fibromyalgia cannot be cured but it can be controlled, it all depends on the mind, not in a bottle of pills.

You may be thinking jeez she’s full of bull…. but it is my opinion and after suffering horrific side effects from medications I am willing to try anything!