One week post op

The last 48 hours have been hell. The pain in the right hand side of my body, neck, shoulders and head have been worse than the first fusion. The reasons for this is that the lower spine I could rest by just laying on the bed. When your neck has been cut open it hurts even to hold my head up, it hurts to swallow, indigestion hurts and I feel bruised inside. This is normal and I am under no illusions that the pain is going to get worse, as I try to undertake my physio exercises.

Ha ha I must have started this post the day before yesterday and then forgot, it was hurting me to text.

I am glad to say today that I feel much better. I think the Oxy is well and truly in my system now. I’m sleeping better than I have done in a long time. I’d never take this stuff for fibro, I can see that you could get in a cycle of constantly increasing your dosage. I can imagine wearing off it is like absolute hell, much worse than tramadol or morphine.

The little dog has been cuddling nonstop, under my sofa blanket and everything lol. He’s so cute and has kept me entertained whilst I am home alone.

Anyway so far so good. The first week has been hell, resting is important, no cleaning, keeping my right arm rested but also not just sitting on my backside all day long. This weekend I want to start walking, build up my strength.

Again I forgot to post this from earlier and now it’s 12.30 at night and I cannot sleep!!

I had pushed fibro to the back of my mind since the operation and today I’ve had a big reminder that it’s still there!! I ate some chocolate cake left over from my daughter which is full of gluten and sugar, the pain in my neck, shoulder, arms and hands is unbearable and I’m struggling to get comfortable. I know it’s my fibro as my lower back is hurting and I have this flu type feeling, a mini flare up. What an absolute tit, I have to stick to my plan, stay healthy. I have a sugar and gluten free cake I’ve been eating fine all week so I should have stuck that that. I’m sure my daughter will be telling me I told you so!! 😂

I know some of you probably have not figured out just how much your diet impacts on fibro, I didn’t believe it myself until I went on the diagnostic diet. I could not believe the difference in how I felt once I’d figured out which food types made me ill🤒. Here are some good groups that CAN affect your condition and increase some symptoms here.

I know some of you will have tried ‘diets’ I fu@@ing hate that word! Diets don’t work, full-stop.

You have to change your eating and drinking habits and make it permanent. Trust me; cutting out a few foods is pointless if you are leaving several other ‘trigger’ foods in your meal planning. Also when you go onto a strict eating/drinking regime the flare ups are more severe but last hours not days/weeks; why? Because you figure out what you ate/drink to make you ill and stop, thus cutting off the intake of that trigger food/drink.

You are what you eat; eat shit and feel shit!! Eat more fresh food, cut out foods full of sugar; yes, even some fruits, mango makes me feel ill as it’s full of sugar.

I need to eat healthy even more right now, I’m trying to recover from one of the worst surgeries I’ve ever had and being silly is not going to help me. Tonight I will hardly sleep which means more pain tomorrow, no energy, negative thinking and more pain! All this for a piece of bloody cake!!

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Changing pain

General anaesthetic (GA)is never good for the digestive system, if you know what I mean! I’ve doubled up on laxidos and last night had my favourite Indian takeaway, but to no avail 😂.

I feel quite comfortable, the morphine is helping really well, I’ve doubled up on the tablets and the Oramorph liquid. I slept pretty well, feel very positive. The pain is changing, it hurts to breathe, I have bad indigestion, but this is normal after a GA.

Ha ha I wrote the above yesterday!! This is now, 3.30am on a Saturday morning. I am shattered, can’t sleep as never can on lots of meds, neck and back is uncomfortable! Might get up and chill out, motorbike racing is on tv soon 👍. I could always have a mid-morning snooze! I keep forgetting that the op was only 3 days ago and not 3 weeks ago.

My body clock is all over the place, I need to relax, as this is why I am off work!! I’d love a massage but could not get comfy yet in any one position…….

Stuff it I’m going downstairs, might do some meditation, listen to some music and relax. Maybe have a posh coffee ☕️.

I am so god damn sore arghhhhhhhh, yet I am soooooo tired. My eyes are rolling whilst typing this 😂😂. Speak soon all

Processed food, poor food choices and fibro

I never expected foods to affect fibro as much as it does for me. We all know that fibro is all about how our nervous systems work. I like to think of it as a very sensitive short circuiting computer system. Our nervous system has its tentacles in everything in our bodies, whether it be physically or psychologically, read here for more in-depth details.

You already know that if you go on an alcohol and takeaway binge that you will feel tired and sluggish for a few days. With fibro it’s the same, only foods and drinks you never thought would affect you, will.

Diets don’t work with fibro either you must remove all potential food groups and stick to a basic diet of certain meats, all fish, green vegetables and seeds and berries plus no caffeine for 3 weeks. This is the purest basic paleo (caveman) diet there is.

You can only eat the pink foods above but as much as you want to for 3 weeks. For the first 3 days you feel absolutely dreadful as your body craves all the other stuff you have been eating and drinking. I had a bad migraine and had to take 2 days off work!! But then I felt fantastic!!

After 3 weeks you can try adding one food in a day for 2 meals; breakfast and lunch; if you feel well continue to eat it, if you gain weight the day after (water retention) don’t eat it again. If you feel ill; increased muscles pain or fatigue don’t eat it. If you only get a mild symptom that goes quickly then it’s an occasional food!!

These foods are what I started introducing first…….

The ones I crossed out I don’t eat anyway. The above foods have a high risk of you having a reaction.

I felt absolutely amazing on the diagnostic diet and lost 29 pounds in weight. But any food that causes a flare up, the reaction is so severe now it’s puts me in bed in agony, but it’s short lived as I don’t eat it again.

Foods I cannot eat without getting ill are:-

  • Anything containing large amounts of sugar
  • White rice or white pasta
  • Alcohol
  • White bread
  • Any processed foods
  • Eggs
  • Chicken unless it’s organic
  • Anything containing ‘E’ numbers
  • Anything containing gum
  • Anything containing MSG
  • High sugar fruit such as mango
  • No processed sauces, tins or jars

Foods I can eat rarely but never more than 2 days in a row:-

  • Anything containing potatoes
  • Indian takeaway
  • Brown bread
  • Brown rice or pasta
  • Nightshade foods
  • Crisps
  • Dark chocolate (above 85%)
  • Any diary
  • Plain vanilla ice cream

I can however eat any meat but not too much red, any fish, any vegetables and fruit that is not high in sugar. I can eat organic snacks such as fruit bars etc….. organic tins, jars and sauces.

I know some of you may think that you don’t have the energy to cook fresh all the time, but you have to get creative and overcook so you can save meals to warm up other nights, use a big slow cooker and let it cook itself. Or failing that get someone else to cook, my husband does all the cooking and when he’s away he over cooks foods and saves them into containers so I can warm them up to save my energy.

Symptoms that have reduced or in some instances disappeared:-

  • Fatigue
  • Gastrointestinal issues
  • Monthly pains
  • Moodiness
  • Headaches
  • Muscle pain
  • Fatigue
  • Itching
  • Rashes
  • Brain fog
  • Insomnia

Etc

If I eat something my body does not like some of the symptoms above get so severe and come on within an hour of eating it, is very severe but lasts a shorter time.

What I did not realise is that due to me eating foods and drinking alcohol constantly this is why I always felt ill, could only sleep 0-3 hours a night and could not stop having bad flare ups, they were increasing and becoming more severe.

This is why diets or just cutting out one or two foods don’t work, you have to give yourself 3 weeks on the bland diet to clear out your system and remove all toxins. Then take another month to add one food in a day, not several at once. It’s not easy but I have had a better result from changing my diet than any pill I’ve tried and believe me I have tried them all.

Why don’t you try it? What’s stopping you? If you don’t do something different you’ll never change your symptoms or the severity of your fibro. You need to find what works for you and stick with it.

Am I a saint? No bloody way I drank gin this weekend, first time in 4 months and ate 2 takeaways but food I know I can eat such as lamb and fish. Yes I feel fatigued and have muscle pain but it will go……..

Why does this work? Because we absorb food into our immune system, glands and nervous system through our intestinal wall it’s that simple. Bad food makes you feel shit! Good food reduces symptoms.. …. read here for more info and try it out.

How can you fix insomnia?

Ha if I knew that I’d be a millionaire!! Now here’s the thing; Fibromyalgia causes insomnia and insomnia is one of many drivers in increasing fibromyalgia symptoms. I once read an article about some controlled tests that were performed on ‘healthy’ volunteers; they were kept awake or continuously awoken over several days and then tested how they felt mentally and physically whilst also performing cognitive tests, all of the volunteers showed symptoms of fibromyalgia, even down to increased levels of pain. 
I go through periods of insomnia and I track my progress with a Fitbit. I actually only used to sleep 3-4 hours a day until I established healthier pre sleep activities and then I increased that average to 5-6 hours, I will go into that in more detail in a second. But then insomnia creeps back in and my average drops back down to 3-4 hours. Read more here 

You’re probably wondering what I did differently to help me sleep? These are what I can remember:-

  • Reduced caffeine intake to 1 cup a day (I’ve gone back to 2is this why I now cannot sleep?)
  • I quit drinking alcohol
  • I never eat within 3 hours of going to sleep
  • I have a warm bath with magnesium flakes every night before bed
  • I take a vitamin super supplement each night that includes melatonin, chamomile and 5htp amongst others
  • I undertake some form of exercise 4/5 times a week either yoga or my power plate, yes even when I feel rubbish, mind over matter
  • I practise meditation daily, especially at night (now this has most definitely slipped off my radar just before bed, I need to start doing it before bed again)
  • I wear UV glasses when it gets dark to cut out the blue light from the tv and my phone
  • I drink 2-3 litres of water a day but never 90 minutes before bed
  • My bedroom is kept cool at around 19 degrees maximum
  • My bedroom is completely dark with blackout curtains
  • I wear earplugs for complete quiet
  • I quit taking medication every night for insomnia
  • Reduced consumption of chemicals by using organic
  • Reduced consumption of non natural foods, do not underestimate the effects of a poor diet!!

Now around 3 weeks ago I started to feel ill like I had some kind of virus, it wasn’t a cold or flu (thankfully my immune system always fights these off plus I take a super supplements with 21 different vitamins in). Ever since I had this short lasting virus I have not slept for more than 2-4 hours a night and this has set off many fibromyalgia symptoms;

  • Headaches
  • Restless legs
  • Nerve pain
  • Muscle aches and stiffness (like having the flu coming on)
  • Mood swings
  • IBS
  • Irritability
  • Pins and needles or burning on my skin all over
  • Cognitive issues; memory and concentration issues
  • And one of the worst; fatigue which I feel like I’ve got a constant hangover, coming down with flu type feeling
  • Depression

All this just because I cannot sleep!!

It’s a vicious circle as sleep deprivation increases symptoms of fibromyalgia and fibromyalgia causes insomnia. Due to having a near miss in my car I even asked my doctor for a couple of sleeping tablets, but they did not work 😂, I have to laugh.

So what should I do, give in, quit, start feeling sorry for myself? No, that won’t solve anything. I will tackle this problem like I do every other problem, by being practical. The solution does NOT lie in regular meds again, it lies within me. I just need to figure this out. I’m going to cut down my caffeine to one a day at 6.30am, stop watching tv half hour before bed and do some meditation/mindfulness yoga and when I cannot sleep I am going to start getting up and meditating rather than tossing and turning in bed all night.

The hardest thing about having insomnia is not being able to sleep in my own bed as I keep my husband awake 😦

If you read this and can relate don’t give up, don’t resort to meds as that’s just a bandaid, use them sparingly and take a long look at your daily activities and lifestyle as the key to removing insomnia will be in there somewhere.

Diet, lifestyle and fibromyalgia insomnia

Here’s my theory, does your diet and lifestyle aggravate fibromyalgia?  Does what you eat and drink stimulate the nervous system and keep you awake at night?  Does not exercising affect sleep?  Does your mindset affect your sleep?  If you answered no to any of these then I would bet you a months wages that it is true, all of it!

I have eaten a largely Paleo based diet for a number of years now, way before I developed fibromyalgia, but I still regularly drank alcohol at weekends.  I gave up regular exercise after my back operation 2 1/2 years ago and tried and quit the gym 3 times with a doctors letter (I didn’t know I had fibromyalgia do thought I was injuring my back further).

I gave up my beloved hypnotherapy hobby as I did not have the energy and my mental health went into crisis mode.  Believe me I hit rock bottom many times! Even begging the doctor to see a Psychologist.

I could not sleep, felt like I had flu, my spinal fusion was hurting like hell and I was so stiff in a morning I had a year off sick in 3 years added together!  I used most of my annual leave to cover up my health problems.

I am sure many of you can relate to the above.  Fibromyalgia is not as complicated as some people make it out to be (Your General Practitioner).  It is a problem with our nervous systems and what affects our nervous systems? Everything! That’s what.  There is no cure, quick fix it’s all down to an approach to life and that means learning new ways to live.  I know what I’m talking about i live with this every day I just could not see it until the last 2 months through research and talking to others I have seen the light.

Fibromyalgia interrupts our sleep and sleep deprivation makes fibromyalgia symptoms worse, so how can WE help ourselves?  

Have you ever kept a food and drink diary and looked into what we eat and drink? Do you still drink several cups of caffeine a day, use cows milk?  Drink alcohol, use sugar? Eat convenience foods?  Skip meals, eat sweets, crisps, cakes and eat everything out of a packet that you shove into the oven or worse a microwave?  I used to.  Here’s what I do now:-

  • I switched to organic (where possible) 
  • I eat plenty of fresh veg, I limit fruit due to the sugar content.  
  • I don’t drink cows milk, who ever decided that drinking another animals milk is good for you?  Calcium is in many other products.  I use alternatives.
  • Ditch caffeine or cut down to one a day, first thing.
  • Ditch sugar, one of the most addictive substances known to man. I use a tiny amount of organic honey in smoothies only.
  • We eat mostly (I’m not a saint) fresh home cooked food.  I guess now you might be thinking I don’t have time to cook?  Make time.  
  • Invest in a slow cooker and get out of bed earlier.  
  • Batch cook, refrigerate and freeze leftovers and make your own TV dinners.
  • Throw away the microwave and use the oven, I did.  Microwaves make us lazy and I don’t think it’s particularly healthy to warm up food with a microwave, have you read how they work?
  • Get a blender and make breakfast the night before
  • Make your own cereal bars or buy organic snacks for when you’re ‘on the go’
  • Don’t eat within 2 hours of going to bed
  • Eat slowly and mindfully, enjoy your food, don’t just wolf it down.
  • Eat smaller portions 
  • Eat every 3 hours to stop yourself from feeling dizzy
  • Ditch white carbs, over processed junk!
  • Ditch processed food full stop
  • Don’t eat anything with ingredients you would never add to home cooked food.
  • Keep takeaways to a monthly treat and go somewhere where the food quality is high standard
  • Stay away from McDonalds, KFC and fast food joints
  • Pub grub is a no no unless home cooked if not they should be avoided unless you want to feel ill!  Ask yourself how sluggish you feel after one!

Remember years ago when your grandmother used to cook, would she go to the shop and throw in processed food into the oven then just throw it on a plate and eat it, no of course not!

This is how my sleep used to look from my Fitbit, absolutely terrible and yes I still went to work but I felt very ill.


A few lifestyle changes, which I will come into another time and changing my diet and this is how it’s changed this week


I haven’t slept 7 hours this year!!

Anything over 4 hours and 30 minutes is a celebration.  Am I cured?  Of course not but no doctor can help you get here.  I’ve tried every sleeping tablet going, Amitryptyline worked for 6 weeks then it stopped and it took me 2 months to wean off them and not I felt ill.

Start looking into your lifestyle, diet choices.  Hey you may even drop those extra pounds you’ve been carrying.  I manage to offload a stone in weight without even hitting the gym regularly.  A big part of aiding sleep also has to be exercise, if you sit round all day and don’t tire yourself out you will not get restful sleep.  But I’ll touch on that next time.  Read more about what YOU can do to help yourself here 

Chronic fatigue and feeling angry

I average around 4 hours sleep every night which when I get in the number 5 is a cause for celebration in this house 💐. I have a pretty good routine:-

  • A hot bath with magnesium flakes and organic bubbles
  • No tv for a minimum of 1 hour before bed.
  • If I use my phone to update my Facebook page and blog I wear my uv glasses.
  • I only have one coffee before 7am
  • I don’t drink alcohol
  • I keep my room well ventilated with a temperature of around 19 degrees
  • My curtains are black and my walls painted dark
  • I wear ear plugs so no noise can wake me up
  • I sleep naked so I am not restricted by clothes
  • I never eat at least 2 hours before bed
  • I mindfully meditate daily before bed and every other day I undertake mindfulness yoga 
  • I have a lavender plant in my bedroom and place some fresh inside my pillow each night
  • I don’t drink water too close to bed so as not to wake in the night for the bathroom 
  • I have no switched on electrical items in the bedroom

I think that I have a pretty strict routine before bed and I really do feel that this has helped me wake up over the past 3 months feeling more refreshed than I have done in the previous 2 years.  But when it gets to about the 5th day of only have 3-4 hours sleep 15-20 hours in total over a working week I start to lose the will to live.  I cannot concentrate, I’m tired, have no energy, my cognitive behaviour starts to suffer.  I hate everyone and everything.  The fake smiles I have to put on at work, people asking me if I’m ok and I nod and say yeah I’m great (when all I want to do is shout out loud NO I AM FUCKING NOT!).

I do know that if I could ramp up my exercise and tire myself out more I’d sleep better, but how can I do that when I exercise then I literally struggle to go to work.  Pacing ah yes good old pacing.  I’m logging down what I do, how I feel etc but each day is different from the next which makes things a little difficult to track.  Some days I can sit for hours others minutes before I get pain.

I feel like I’m having some sort of mental crash, possibly from coming off citalopram and Amitryptyline?  Delayed reaction?  I’ve been off them 2 weeks.

Does anyone know of how I can get more sleep without resorting to regular medications?  Am I missing some vital information?