Success at improving fibromyalgia symptoms

It has taken me a couple of years of blood, sweat and tears to find out what affects my fibromyalgia. We all have similar symptoms and similar causes of flare ups, but we are all different and a symptom you may have I may not and vice versa.

Flare ups are caused by a number of factors:-

  • Stress and anxiety
  • Insomnia
  • Illness
  • Surgery
  • Certain foods and drinks
  • Doing too much
  • Doing too little

I have introduced a few things to my life that have made a positive difference:-

  • Mindfulness meditation
  • Massage
  • Gentle exercise
  • Positive thinking and affirmations
  • Pacing my activities
  • Hot tub/hot baths
  • A healthier organic diet using 90/10 ratio; 10% being not healthy and organic 😂
  • A strict bedtime routine
  • Stretching

I made big changes to my diet which has made a huge difference and affected the following symptoms by either reducing or eradicating them completely:-

  • Removing tingling and numbness
  • Reduction and almost an elimination of anxiety
  • Reduction in insomnia
  • Elimination of diarrhoea and nausea
  • Improved by ability to cope with stressful situations
  • Reduced my negative moods
  • Reduced my fatigue
  • Loss of 25 pounds in weight

In order to find out what food affected me I had to go onto what is called a diagnostic diet for 2 weeks. I basically lived on hunter and gatherer foods and drinks. No caffeine, alcohol, processed food etc and the only meat and fish I could eat is what you’d be able to kill when we were cavemen and women, certain vegetables (green and cauliflower, I added this in as I love it) and berries, kiwi and seeds. The foods I could eat are highlighted in pink on this picture.

then I extended this for another week and could eat as much a liked!!

I got migraines, headaches, cravings and felt awful, the consultant explained it was down to withdrawals. After the 5th day I started to feel much better, in fact I felt great, had more energy and started to sleep more than my usual 3 hours a night!

After 3 weeks I slowly, 1 day at a time, started to introduce one food item a day, I ate it for breakfast along with the diagnostic foods too, then again at lunchtime and kept a diary of any reactions plus any overnight weight gain. If I had a reaction it was very severe and usually was a headache, numbness, tingling, fatigue, diarrhoea, muscle pain or weakness, or a combination of the above. I’d also put weight on overnight which is not actual fat but my body reacting to the food; water retention. I then waited till the flare up passed and continued to reintroduce food one at a time. The list of foods I tried after the initial diagnostic diet are in the picture below. All apart from the ones I crossed out as I had already stopped eating these some years ago.

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ome foods I can eat rarely as these do not cause a major flare up of symptoms but minor ones, are the following:-

  • Diary
  • Wheat
  • Gluten
  • Low sugar items
  • Caffeine

Foods I cannot eat as they dramatically affect my symptoms the I had reduced or eradicated are the following:-

  • Alcohol
  • Sugar
  • Any processed foods
  • Anything containing E numbers, MSG or anything artificial
  • Eggs (due to the conditions their parents are raised according to my consultant. Poor living conditions, fed a poor diet and given hormones)
  • Chicken (same reason as above)

I don’t eat a lot of red meat but love turkey nom nom. I also don’t eat many ‘other’ white foods like pasta or rice, opting for the occasional wholewheat option or substitutes, occasionally eating white potatoes and switching to non MSG organic gravy. We make all our own sauces now not ones that are pre-made unless free from additives and chemicals.

I can however eat crisps with no additives yummy and very dark chocolate 🤗.

Milk upsets my stomach but I can get away with a little bit so I use a substitute, oat milk is lovely and I can use coconut and almond but not soy due to hormone issues (cysts and Endometriosis). I can drink coffee as long as it’s not Jarred and it’s freshly brewed ☕️.

Alcohol makes me very ill apart from the odd gin but I quit last December as I really cannot see the point, whether this lasts all year who knows 😂. I cannot eat mango or bananas as they cause a mini flare as they contain too many natural sugars.

The worst reactions I get are from MSG and sugar. The fatigue and muscle pain are very extreme.

My consultant explained to me that once you go 3 weeks on a very bland diagnostic diet it’s like a reset to the system, so any foods you reintroduce create a much more severe reaction that I wouldn’t have spotted on my previous diet.

Am I an angel 😇 nope. I do still fall off the wagon but at least I can pinpoint why and this keeps me positive.

The other things I changed was my bedtime routine. I wear uv glasses as move away from the tv at least half an hour before bed to help calm my nervous system, increase my natural melatonin (blue light reduction) and reduce overstimulation of my brain. I meditate for 10-20 minutes before bed using my headspace app and headphones. I have about 5 different subjects on the go at once 👌🙏. This new activity has helped improve my mental health and negative thinking and helped me remove unhelpful thoughts 💭, I just tend to laugh at myself now. I do however allow myself the occasional cry 😭. As I find it helps clear my head and move on from whatever is bothering me at the time, there are no positives in bottling up negative feelings.

Immobility has worsened my morning stiffness and muscle aches and increased my fatigue so much I struggle to walk more than 20 metres or use the stairs in my house! You need to find the right gentle exercise and persevere. I used to be super fit and have muscles pre fibromyalgia, it took me years to accept that I can never train like that anymore. But it doesn’t matter as health has to come first. I find doing gentle interval training on my power plate works wonders for me. Yes I hurt a few days after, but I am going to hurt anyway 😂 might as well be hurting from doing something than doing nothing. Find out what works for you; walking, swimming, yoga, stretching, Pilates, biking, whatever, just don’t make the same mistake I have and stop moving. It’s better to ache from moving than hurting from not!!!!!!!!!

I started slow, just a few mins once a week and now I’m up to 5 mins 3 times a week and I will continue to increase this gradually. Everyone has to exercise to stay healthy, you will hurt so just slow it down.

Learning self hypnosis and NLP techniques is also important too, use positive language, behaviours and thoughts. I used to moan constantly but all it did was make myself feel worse. Now I focus on the positives, even on really bad days like today, I’ve been up all night with back pain but at least I’m still breathing and I have a 90 minute massage today and half day off work yay. Yes I’ll be struggling to walk tomorrow as the massage is painful the day after but it’s great for my stiff tired muscles and exercises them.

I know it’s hard and I know how you feel, you want to give up, but what is the alternative? Life is too precious so grab it by both hands, by the neck if you have to 😂 and start making some changes to how you live; keep a food log, try the diagnostic diet and eat healthier, use a pacing diary so you know how much you can manage before fatigue kicks in (takes me about 48 hours to kick in) get moving, train you mind like you would your body. If you don’t change your life you will never feel any different!

Take care and ask any questions as I am completely open and honest, no one knows how you feel but someone with fibromyalgia. You can improve your symptoms even if it’s not your primary condition like me. If I can do it so can you 👍💖

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Diagnostic diet part 2 and Fibromyalgia 

As promised, I would send you an honest update on how my diagnostic diet is going.  I started before I spoke to the consultant and completely ditched all processed food, so nothing came out of a packet.  I lost 7 lbs in 2 weeks and felt so much better; less fatigue and reduced muscle pain.  

I went into the diagnostic diet for 2 weeks to cut down my diet to a very basic bland hunter gatherer type.  This basically removes all potential foods that could cause a reaction with my nervous system.


You only eat the highlighted foods for the first 2 weeks.  You track your symptoms and at first you feel worse; giving up coffee gave me a migraine.  I lost 12 pounds in 2 weeks!!  

After the first 2 weeks my daily headaches disappeared, my fatigue was reduced, my muscle pain went away and the nerve sensation issues I had like tingling, itching, pain upon touching disappeared.  

I was just coming out of a flare up when I started the diagnostic diet and my sleep was terrible; 7 hours over 3 nights.  I asked for 5 days worth of sleeping tablets and usually they take my sleep from 3/4 hours to 4/5 but this time they worked great.

It took about a week to get over stopping the sleeping tablets (this is why I don’t like to take them)! Now I’m sleeping much better, deeper and longer 5/6.5 hours. 👍

Switching to fresh food only I lost a total of 1 stone and 7lbs in a month and never went hungry.

My moods are better, less extreme and my menstrual cycle was less severe.  I haven’t had digestive issues either.

The next phase of my diet is to slowly start bringing in the rest foods not highlighted on the photo above, one by one and track symptoms.

So far I’ve been able to eat asparagus, grapes, veal, tuna steak and tomatoes.  

I’m still not able to exercise until I’ve finished the next month as this could skew the symptom tracker.

I can’t wait to restart proper exercising as I’m so weak, getting out of breath walking up hill or up or down steps.  I couldn’t even keep up with my 67 year old dad!

It’s not easy as you have to have willpower and you have to track everything; symptoms and weight, which will start to increase if my nervous system reacts to it.

I have a comprehensive stool analysis kit to do and send off but I need to wait till I get paid as it’s £160 for the analysis; 3 collections and I have strict guidelines to follow including mixing with liquids, dealing and posting lol.  I have a list of other tests to do too that I have to pay for as the NHS has refused, simple blood tests.

I am willing to do anything to feel better and the Airedale Allergy Clinic here have done more for me than the NHS have in over 3 years.  The NHS don’t have the funding or support to investigate or locate cures for conditions like Fibromyalgia.  The US are way out front in this area as it’s about making money and a cure or even medications or treatments would rake in millions.  GPs are trained to give us meds and there aren’t any specialists only pain or arthritic specialists available in the UK, we are sent to these for more band aid treatments for our symptoms.  What we need is locating and dealing with the root cause!! 


Feel free to ask me any questions!  Or join my page here for more insights and research sharing.  

My first consultation at Airedale Clinic

Airdale are a private clinic that specialise in finding out what chemicals and foods affect our immune systems and cause medical problems, treating the root cause rather than masking the symptoms with medications.  You can read more about the great work the clinic do here.

When I was tracking my symptoms with a log I found a number of things that affected my symptoms of fatigue and stress:-

  • Sleep deprivation
  • Stress
  • Over doing things
  • Food and drink
  • Chemicals 
  • Hot weather
  • Dehydration
  • Injuries and other painful medical conditions

But some of these things affected each other too, for example certain foods affected my sleep, an injury affects my fatigue etc.

The first consultation was done over Skype to reduce my need to do the 1 1/2 hour round trip to Keighley which I would not have been able to manage.  It was with the Co-Director Dr Apelles Econs, lovely man, very caring and understanding and very knowledgeable about autoimmune disorders and allergies.  He gave me a frank explanation of how fibromyalgia works and affects the nervous system and what can be done to improve symptoms.  I have attached my treatment plan for you to review below:-


I want to share my journey with you to allow you to see what I am trying and what improvements I have.  There is no cure for fibromyalgia and the NHS are only interested in giving us pills and potions to band aid over our symptoms, not to treat the root cause.

The initial consultation was £175 but you can’t put a figure on good health.  The GPs only know how to prescribe meds or do referrals to specialists, but in the UK there aren’t any for fibromyalgia.

I recently had a bad flare up due to injuring my knee falling off a motorbike in training, I actually fractured my knee and again it took 2 months under the creaking NHS to find this out, as I had to wear a leg brace for a month restricting my movement the immobility flared up my fibro and back pain to the worst levels I’ve ever experienced.  

My healthy diet lapsed due to laziness and I put on a stone in weight and felt dreadful.  You are what you eat after all.  I gave myself a kick up the backside and ditched the processed foods and lost 7lbs in 3 weeks, since starting my diagnostic diet as recommended by the Airedale Clinic I’ve lost a further 3 pounds in the last 5 days.  At first I felt lethargic, had bad headaches (gave up coffee), could not sleep at all and my aches and pains got worse.  But I’m now on day 5 and I’m feeling a little better, I was in another mini fibro flare up due to overdoing things at work but I feel the diet is helping me recover quicker.  The only problem I have right now is very bad lower back ache which is hurting every time I remain still, especially when sitting and it’s worse when I lay down.  The only foods I can eat are detailed below, highlighted:-


The diet helps to detect whether food is affecting my condition to track how I react to the natural diet. It is only for 2 weeks and quite frankly I would do anything to feel better, even as one person put it yes I would sell my soul.

This is one of the pages out of my diet book:-


I have also obtained my full list of tests and results to share with the clinic from the NHS and I have a list of potential tests should I want to go ahead with them privately:-


I have ordered the stool test to start with until I know whether I have had any of these on the NHS, which I doubt as the NHS wouldn’t treat the outputs of most of the above tests.

I have a follow up consultation on the 11th to discuss how I’ve felt the diet has gone and discuss next steps.  Thankfully sebsequent consultations are only £90.

I have bought a vitamin B12 spray as this vitamin can help with fatigue, aches and pains, the tablet form is not adequately digested by our systems, but the spray works best, the gold standard are vitamin B12 injections.


I will update you on my progress with honesty and complete openness.  Maybe there is something I am doing that you would like to try.

Please feel free to ask me any questions, my Facebook page is updated on a more regular basis and is available through my blog.

Trial patient for Fibromyalgia 

After the initial bad couple of years with trying different medications with this condition and feeling disgusted with just constantly being fed more pills.  I wanted to try to put this ‘situation’ to some good use.

There is not a cure for #fibromyalgia and as the nervous system and mind are so complex and every single person is different I doubt there we will be.  But what if a combination of holistic and medical treatments were available to improve our symptoms and more importantly quieten down the root cause; our ‘short circuiting’ nervous system and brain?

I spent an afternoon searching on the internet for clinical trials in the UK and came across this site here, you can search the medical condition and even an area of the UK and see what is available, sign up, contact people for more information or even just ask to be kept informed.  Brilliant I thought!!  Let’s get involved, I’m game. 

I was turned down for one as I had took Tramadol in the last 6 months and one had no funding to pay for my travel, but I was accepted for another.

I am just waiting for a date to travel over for the one day trial and they have offered to pay for me to travel and my time plus I can spend some time with a Fibro specialist to talk about anything I want.  Fantastic…..

I will keep you all posted, but why don’t you take a look at the site and see what you think? 

Heat and pain go together like pea and carrots!

I feel so strongly for using heat for pain from my fusion, disintegrated disc at L5/L4 or general Fibro aches I feel I should have a soap box to stand on.

Right now I’ve ditched regular painkillers and I am trying a holistic approach to pain management.  It is tempting to eat painkillers and I will only resort to this should the pain develop into a full on Fibro attack (all over aches and pains). What I prefer to use is a hot water water bottle, yes at work.


I get used to the strange looks, but mainly people are great about it when they see me stood in the kitchen filling this up.  I had to buy a bigger, brand new bottle as the last one read ‘hot stuff’ 😂😂😂

I won’t bore you with the science, but please read here if you’re like me and need to understand the ‘why’.

I used to take over 25 painkillers prior to my back operation and when the Fibromyalgia attacks started it was back up to 15 plus a day, not all the same brand I must add 😂😂.   I have now decided to sporadically take them, in other words when I need to.  I had this crazy doctor that told me to take them all in a regular basis to keep the pain away, which is fine, but when you have Fibromyalgia everything you do affects your nervous system and can have catastrophic results.

For now I am happy with my hot water bottle and my one Tramadol tablet I just had!!