Diagnostic diet part 2 and Fibromyalgia 

As promised, I would send you an honest update on how my diagnostic diet is going.  I started before I spoke to the consultant and completely ditched all processed food, so nothing came out of a packet.  I lost 7 lbs in 2 weeks and felt so much better; less fatigue and reduced muscle pain.  

I went into the diagnostic diet for 2 weeks to cut down my diet to a very basic bland hunter gatherer type.  This basically removes all potential foods that could cause a reaction with my nervous system.


You only eat the highlighted foods for the first 2 weeks.  You track your symptoms and at first you feel worse; giving up coffee gave me a migraine.  I lost 12 pounds in 2 weeks!!  

After the first 2 weeks my daily headaches disappeared, my fatigue was reduced, my muscle pain went away and the nerve sensation issues I had like tingling, itching, pain upon touching disappeared.  

I was just coming out of a flare up when I started the diagnostic diet and my sleep was terrible; 7 hours over 3 nights.  I asked for 5 days worth of sleeping tablets and usually they take my sleep from 3/4 hours to 4/5 but this time they worked great.

It took about a week to get over stopping the sleeping tablets (this is why I don’t like to take them)! Now I’m sleeping much better, deeper and longer 5/6.5 hours. 👍

Switching to fresh food only I lost a total of 1 stone and 7lbs in a month and never went hungry.

My moods are better, less extreme and my menstrual cycle was less severe.  I haven’t had digestive issues either.

The next phase of my diet is to slowly start bringing in the rest foods not highlighted on the photo above, one by one and track symptoms.

So far I’ve been able to eat asparagus, grapes, veal, tuna steak and tomatoes.  

I’m still not able to exercise until I’ve finished the next month as this could skew the symptom tracker.

I can’t wait to restart proper exercising as I’m so weak, getting out of breath walking up hill or up or down steps.  I couldn’t even keep up with my 67 year old dad!

It’s not easy as you have to have willpower and you have to track everything; symptoms and weight, which will start to increase if my nervous system reacts to it.

I have a comprehensive stool analysis kit to do and send off but I need to wait till I get paid as it’s £160 for the analysis; 3 collections and I have strict guidelines to follow including mixing with liquids, dealing and posting lol.  I have a list of other tests to do too that I have to pay for as the NHS has refused, simple blood tests.

I am willing to do anything to feel better and the Airedale Allergy Clinic here have done more for me than the NHS have in over 3 years.  The NHS don’t have the funding or support to investigate or locate cures for conditions like Fibromyalgia.  The US are way out front in this area as it’s about making money and a cure or even medications or treatments would rake in millions.  GPs are trained to give us meds and there aren’t any specialists only pain or arthritic specialists available in the UK, we are sent to these for more band aid treatments for our symptoms.  What we need is locating and dealing with the root cause!! 


Feel free to ask me any questions!  Or join my page here for more insights and research sharing.  

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My first consultation at Airedale Clinic

Airdale are a private clinic that specialise in finding out what chemicals and foods affect our immune systems and cause medical problems, treating the root cause rather than masking the symptoms with medications.  You can read more about the great work the clinic do here.

When I was tracking my symptoms with a log I found a number of things that affected my symptoms of fatigue and stress:-

  • Sleep deprivation
  • Stress
  • Over doing things
  • Food and drink
  • Chemicals 
  • Hot weather
  • Dehydration
  • Injuries and other painful medical conditions

But some of these things affected each other too, for example certain foods affected my sleep, an injury affects my fatigue etc.

The first consultation was done over Skype to reduce my need to do the 1 1/2 hour round trip to Keighley which I would not have been able to manage.  It was with the Co-Director Dr Apelles Econs, lovely man, very caring and understanding and very knowledgeable about autoimmune disorders and allergies.  He gave me a frank explanation of how fibromyalgia works and affects the nervous system and what can be done to improve symptoms.  I have attached my treatment plan for you to review below:-


I want to share my journey with you to allow you to see what I am trying and what improvements I have.  There is no cure for fibromyalgia and the NHS are only interested in giving us pills and potions to band aid over our symptoms, not to treat the root cause.

The initial consultation was £175 but you can’t put a figure on good health.  The GPs only know how to prescribe meds or do referrals to specialists, but in the UK there aren’t any for fibromyalgia.

I recently had a bad flare up due to injuring my knee falling off a motorbike in training, I actually fractured my knee and again it took 2 months under the creaking NHS to find this out, as I had to wear a leg brace for a month restricting my movement the immobility flared up my fibro and back pain to the worst levels I’ve ever experienced.  

My healthy diet lapsed due to laziness and I put on a stone in weight and felt dreadful.  You are what you eat after all.  I gave myself a kick up the backside and ditched the processed foods and lost 7lbs in 3 weeks, since starting my diagnostic diet as recommended by the Airedale Clinic I’ve lost a further 3 pounds in the last 5 days.  At first I felt lethargic, had bad headaches (gave up coffee), could not sleep at all and my aches and pains got worse.  But I’m now on day 5 and I’m feeling a little better, I was in another mini fibro flare up due to overdoing things at work but I feel the diet is helping me recover quicker.  The only problem I have right now is very bad lower back ache which is hurting every time I remain still, especially when sitting and it’s worse when I lay down.  The only foods I can eat are detailed below, highlighted:-


The diet helps to detect whether food is affecting my condition to track how I react to the natural diet. It is only for 2 weeks and quite frankly I would do anything to feel better, even as one person put it yes I would sell my soul.

This is one of the pages out of my diet book:-


I have also obtained my full list of tests and results to share with the clinic from the NHS and I have a list of potential tests should I want to go ahead with them privately:-


I have ordered the stool test to start with until I know whether I have had any of these on the NHS, which I doubt as the NHS wouldn’t treat the outputs of most of the above tests.

I have a follow up consultation on the 11th to discuss how I’ve felt the diet has gone and discuss next steps.  Thankfully sebsequent consultations are only £90.

I have bought a vitamin B12 spray as this vitamin can help with fatigue, aches and pains, the tablet form is not adequately digested by our systems, but the spray works best, the gold standard are vitamin B12 injections.


I will update you on my progress with honesty and complete openness.  Maybe there is something I am doing that you would like to try.

Please feel free to ask me any questions, my Facebook page is updated on a more regular basis and is available through my blog.

Pain pain pain 

I am not going to lie, the pain is at an all time high as it feels like I’ve got the early stages of flu.  I felt rough this morning, had 2 cocodamol felt slightly better, went to the bike shop to get our new bikes and had another coffee, one more than my usual, felt great, Christ I felt high.  Then I crashed big time, I felt dreadful, exhausted and in pain.

I decided to go for a little trundle out on my new bike to learn how to use gears, I’d passed my CBT on an automatic bike.  Now the way Fibro works is every little amount of ‘stress’ which normally I’d just deal with, my head and body go into full on ‘fight’ mode, I either hold my breath or take fast small breaths, the pain starts and I feel exhausted.  I managed to deep breathe and kept it under control.


After an hour I went home exhausted and in great pain, like having the flu, especially in my lower back around where I have had it fused.  I went to bed, listened to 2 mindfulness meditation sessions, ate a chicken snack, used a hot water bottle and after an hour of being in agony I took 2 cocodamol, begrudgingly, as I do not want to rely on pain pills.

I’m sat in bed still, hoping I feel better so I can go round the block on my new bike to get used to it.  Then I have all night and day to relax!!  Wish me luck.

Do you have tips and techniques you use to get you through the early stages of a bad Fibro attack?

Fibromyalgia and exercise

I read this article on the Internet here and found the advice to be very good.

I used to be extremely fit, lifting heavier weights than my husband even!! I’d work out 6 times a week and could burn upto 1000 calories an hour, I used to eat a lot of protein and complex carbs to keep the energy levels up.  Since I’ve been in constant pain it has been hard as Fibromyalgia increases my exercise soreness to the extreme.  I literally feel like I have flu.

The more exercise a person does the stronger we become and that means the less tired we get undertaking normal activities.  I switched from interval training and weights to nothing and boy did I feel like death.  I had more stiffness, aching, felt more tired after just pottering around and I felt more stressed, less endorphins!!

I decided to restart yoga, mindfulness yoga, managed 2 x 20 minute sessions this week, one day on and one day off etc.  I also forced myself to go swimming today after work.  I only did 8 lengths, s far cry from the 40 I used to do about 4 years ago.  I am hurting now but I feel happy I went and I know tomorrow I will ache but I just need to remember why; it’s my body’s way of telling me I did some good and I might have a tough day tomorrow but the long term benefits of exercising outweight the negative.

I’ve included a picture of my Fitbit page to show you how it helps me track my day. Last night was one of the best sleeps I have had, over 5 hours with less thrashing around (check out the blue lines), I hit all my goals apart from steps, but that’s ok because I’ve been swimming.


My calories are still quite low but that is okay.  I’ve ate plenty of low calorie food today I certainly haven’t starved myself.