Fatigue and muscle weakness and pain getting worse

Sometimes it takes a while to realise that things are getting worse with your health.   I’ve been attending Download Festival now for 9 years and I noticed last year I was more tired and achy but this year was dreadful.  I only managed to walk into the arena once each day and I had to spend the rest of the time sat in the van.  I missed all the headliners.  The Disability camping was moved further away to a better site but it was a 50 minute round trip to the entrance on a hill.  I could not walk that far so when I went back to the camper I was done in.  Now I’ve always been able to walk around the festival but this year it was different.  I have took the decision next year not to go and I am going to start working on my fitness levels.  

I read an article about a woman that started doing intense interval training and it was by no means easy but she managed to reduce her fibro symptoms so much that she doesn’t feel that she has it anymore. I do believe this is possible and I can only imagine how ill she felt and how much blood, sweat and tears she shed.  Now obviously this is not an easy task but if one person can do it then it is possible and not impossible.  I used to do high intensity interval training even when my back was degenerating and it was only when I stopped training that my fibromyalgia symptoms started to come out.  I even trained after my fusion and it’s only when I started to hurt I slowed down training that I started to get more ill.  The less you move the worse it gets. 

Our bodies are not made to be immobile we were naturally born hunters always moving around, but as time goes on our lifestyles make us more unhealthy.  We have tv to watch, cars to move around, processed and fast food.  Drugs we can take to mask over health problems.

I am a real believer that food and exercise being the only medicines I need.  All medications have side effects and are not good for the mind or body.  I tried to come off anti depresssnts last year and use s more natural alternative and I became so ill after 3 months I went back into them.

Painkillers are not good for the body either and you get used to them so end up either on maximum dosage or on something stronger.

I have never suffered from such debilitating fatigue or muscle aches and weakness until this year and it’s getting worse.  Some days I can barely walk at all and I’m constantly having to rest after everything I do.  I have to plan all my activities to the finest detail so not to overload my nervous system.  I cannot stand loud music or bright lights and have to wear earplugs a lot, which is fine I have no problems with that.  I get sunburnt easier and my skin swells up so I bought some natural sun cream.  My scalp started to itch and I bought some special shampoo which reduced the itching.

The fatigue and muscle weakness is extreme.  I find myself doing less and less and from what I have noticed the fatigue, weakness and pain is getting worse.  It is a battle of the mind as our mind tells us to do less as we hurt, but it is the wrong decision.

The less you do the weaker the muscles get, but it is much more painful to exercise as muscle pain can be very extreme with fibromyalgia.  When I used to regularly work out I used to hurt from the gym but I liked it as I knew I was getting stronger.  But with fibro the pain is sometimes so bad after working out that it can make me cry and my whole body throbs and every attempt to move is excruciating.  In order to get stronger I have to keep pushing so the pain from working out will last weeks or even months.  You have to start slow, I have managed to do 3 ten minute workouts on the power plate this week.  Next week I am going to build up to 4.  I am also trying to walk every day and I have stopped using the lift at work and take the stairs.
Next year I am not doing the Download festival and I am hoping to get back into interval training.  I want to test out the theory of regular exercise reducing fibromyalgia.  Exercise can help reduce anxiety, depression, increase mental alertness, reduce insomnia, reduce muscle weakness and aches and pains.  Over time it can also help with fatigue.  In the short term it will get worse but what have I got to lose, I hurt anyway whether I move or not.  I have felt a dramatic worsening of physical symptoms from doing less exercise so my moving less to ease the symptoms have made it worse.  The only way to change what we have is to do something different so that it what I am going to do.  Here is some good tips of exercising with fibro here 

Fatigue and fibromyalgia 

I have to be honest fatigue and anxiety are two of my most crippling symptoms at the moment.  I have had a busy weekend with a motorbike lesson Saturday morning, loading up the campervan for camping and unloading on return then I went out on my motorbike 3 miles to watch a stunt show for 2 hours.  Monday I felt great, Tuesday and Wednesday morning I have felt by far the worse I have ever felt in terms of fatigue.

I open my eyes and the stiffness and pain is extreme I feel it in every part of my body all over my skin, like I’m severely bruised, I cry lots more out of frustration I guess.  I struggle out of bed and it takes me between 90-120 minutes of waiting for my tramadoland the caffeine from my coffee to kick in.  I hate this feeling more than anything it’s horrible, getting into work is a massive struggle, today I have booked a days annual leave as I don’t even have the energy to get up.  I’ve been laid in bed for 3 hours now!!

Fatigue is a difficult one it’s all about pacing and you have to keep a diary of activities to learn how much you can do and when to rest to reduce fatigue flare ups, fatigue never kicks in straight away it takes my body 48-72 hours for it to kick in but when it does it floors me.  It’s a frustrating experience as I really had fun with my family this weekend and now I am paying the price.

Tips for controlling fatigue which I do not always follow hence why I am feeling ill today:-

  • Learn pacing; this means stretching out activities over a longer period.  I’ll give you an example I used to hoover the whole house in one go, now I have a lightweight rechargeable hoover and I do a room a night.  
  • Find easier ways to do things.  All my shopping is done online and delivered, any other essentials are fetched by my daughter and husband
  • Hire a cleaner or ask a family member or friend to help.  I am a proper clean freak so clutter and dirt stress me out so I pay my daughter a wage to clean.
  • Find ways to rest and this does not necessarily mean go to sleep, napping messes up your sleep health.  It means finding a way to relax which could be watching tv, reading a book, doing some crafts, sitting in the sun, etc etc
  • Meditate, get on the sofa and put on a YouTube and look up mindfulness meditation close your eyes, switch off your phone and follow the instructions.
  • If you are feeling down then have a good cry and get it out your system then move on, it’s my favourite way of getting all the frustration out!  Don’t let it ruin your day!
  • Stay positive, focus on what you have and what you can do not what you can’t.  I know this is hard but life is beautiful and when fatigue kicks in it’s overwhelming but we all have great things in our life even if it’s just the blue sky and sun today.
  • Keep telling yourself it will pass because it always does.  If needs be write it down ‘it will pass’ on an A4 sheet of paper and stick it on the wall to remind you.
  • Increase your painkillers to help you get through the flare up but remember to reduce back down or you could end up on a slippery slope of ever increasing pain meds.
  • Take a hot bath, not a shower and use magnesium flakes as they soak in your skin, at first you will itch and go redbut as your magnesium levels increase in your body this will stop.
  • Eat healthier than ever before, poor diet choices will increase fatigue.
  • Do not drink any alcohol as this will make you feel worse!!  The alcohol turns to sugar and is toxic to your liver it will only prolong the fatigue.
  • Get a massage it releases and removes toxins in the body and you will feel the benefit later on in the day.
  • Go and sit in the sun and top up your vitamin D levels naturally.
  • Remember your vitamins.
  • Talk to someone about how you feel, sharing your experience helps.  Why do you think I have my fibro page I need you more than you need me!!

Take a look at this site it’s got great tips and logs to help you plan living with fibro here 

Fibromyalgia and supplements

It took a long time for me to get diagnosed with Fibro, over 2 years after my operation.  That’s pretty fast according to research as the average is usually around 5.  Not surprising really as Fibromyalgia is a nervous system disorder and reliable positive tests for this condition has literally only just been tested…….  But even though there are a set of symptoms that we all feel; tender points, more pain in weak spots, extreme insomnia, skin tingling and burning and increased sensitivity to pain and psychological stresses plus exhaustion, there are also things that some get and others don’t, I don’t get IBS, but I eat an 80% natural diet?  Does that make a difference?  I think so? I’ve had migraines so severe I’ve ended up in A&E!  Why I stupidly drank 3 cans of coke at a party (something I never drink) others don’t.  I also get either overheated when it’s warm and get raynaud’s syndrome, others don’t etc etc.

There is one thing I have read over and over, we seem to have certain vitamin deficiencies; I was diagnosed with low vitamin D and an underactive thyroid and I put on 14 pounds (I don’t use KG 😂) in a year.  I started using D3 with calcium at a high dosage and a thyroid supplement:-


Within 6 weeks both levels were back to normal, I also started exercising by walking more and ate a high protein diet and I lost the weight in 3 months.  I also take vitamin E, CQ10, B1 and Cumin or Turmeric.

But there are many vitamins that we would benefit from taking, don’t underestimate the power of vitamins just because they are prescribed.  Read more here.  Most vitamins are more powerful than medication and have either no or minimal side effects but you just check with your doctor if taking medication.

I took the decision to ditch all regular meds as I was sick of the side effects plus no painkiller worked and I was now on Oramorph!!  You get used to painkillers and they stop working, they did me anyway.

I signed up for these:-


For those of you that have done you own research the content of these two supplements are the best I have ever seen!  I already take 6 of these vitamins at a high expense.  You can read here for more info. Read what each supplement does.   Now I’m not stupid I don’t look at this through rose coloured spectacles and think it’s a cure, there is no cure,  but I know a damn good supplement when I see one.  I have to come off 2 anti-depressants though as the sleep aid has 5-htp in it (serotonin) but hey I’m game, sign me up.  

I’ve researched this stuff to death and no one  has reported bad side effects apart from the usual ‘it doesn’t work’ but you have to give these things time and slowly increase up to the optimum dosage, if it says 2 X twice a day take 1 a day then 1 X 2 times a day and so on. Plus you have to give it at least 6 months to notice a difference. 

I have to order it from the USA but I don’t care and it may cost me £65 a month for both supplements together but you can’t put a price on good health!

What have I got to lose?  What with mindfulness, healthy eating and drinking, supplementation, exercise and no regular medication I know deep in my heart I will do this.  Plus I’ve took a less stressful path in my career into a role I did 20 years ago, stuff it, I put my health before my career.

I have to, there are other people out there living life to the full with this condition that lost everything including careers, husbands and homes and after years of struggle by making changes to their lifestyles they have done it.  So why can’t I?

Wish me luck and I hope you give me support through the good and the bad times.