Fatigue and fibromyalgia 

I have to be honest fatigue and anxiety are two of my most crippling symptoms at the moment.  I have had a busy weekend with a motorbike lesson Saturday morning, loading up the campervan for camping and unloading on return then I went out on my motorbike 3 miles to watch a stunt show for 2 hours.  Monday I felt great, Tuesday and Wednesday morning I have felt by far the worse I have ever felt in terms of fatigue.

I open my eyes and the stiffness and pain is extreme I feel it in every part of my body all over my skin, like I’m severely bruised, I cry lots more out of frustration I guess.  I struggle out of bed and it takes me between 90-120 minutes of waiting for my tramadoland the caffeine from my coffee to kick in.  I hate this feeling more than anything it’s horrible, getting into work is a massive struggle, today I have booked a days annual leave as I don’t even have the energy to get up.  I’ve been laid in bed for 3 hours now!!

Fatigue is a difficult one it’s all about pacing and you have to keep a diary of activities to learn how much you can do and when to rest to reduce fatigue flare ups, fatigue never kicks in straight away it takes my body 48-72 hours for it to kick in but when it does it floors me.  It’s a frustrating experience as I really had fun with my family this weekend and now I am paying the price.

Tips for controlling fatigue which I do not always follow hence why I am feeling ill today:-

  • Learn pacing; this means stretching out activities over a longer period.  I’ll give you an example I used to hoover the whole house in one go, now I have a lightweight rechargeable hoover and I do a room a night.  
  • Find easier ways to do things.  All my shopping is done online and delivered, any other essentials are fetched by my daughter and husband
  • Hire a cleaner or ask a family member or friend to help.  I am a proper clean freak so clutter and dirt stress me out so I pay my daughter a wage to clean.
  • Find ways to rest and this does not necessarily mean go to sleep, napping messes up your sleep health.  It means finding a way to relax which could be watching tv, reading a book, doing some crafts, sitting in the sun, etc etc
  • Meditate, get on the sofa and put on a YouTube and look up mindfulness meditation close your eyes, switch off your phone and follow the instructions.
  • If you are feeling down then have a good cry and get it out your system then move on, it’s my favourite way of getting all the frustration out!  Don’t let it ruin your day!
  • Stay positive, focus on what you have and what you can do not what you can’t.  I know this is hard but life is beautiful and when fatigue kicks in it’s overwhelming but we all have great things in our life even if it’s just the blue sky and sun today.
  • Keep telling yourself it will pass because it always does.  If needs be write it down ‘it will pass’ on an A4 sheet of paper and stick it on the wall to remind you.
  • Increase your painkillers to help you get through the flare up but remember to reduce back down or you could end up on a slippery slope of ever increasing pain meds.
  • Take a hot bath, not a shower and use magnesium flakes as they soak in your skin, at first you will itch and go redbut as your magnesium levels increase in your body this will stop.
  • Eat healthier than ever before, poor diet choices will increase fatigue.
  • Do not drink any alcohol as this will make you feel worse!!  The alcohol turns to sugar and is toxic to your liver it will only prolong the fatigue.
  • Get a massage it releases and removes toxins in the body and you will feel the benefit later on in the day.
  • Go and sit in the sun and top up your vitamin D levels naturally.
  • Remember your vitamins.
  • Talk to someone about how you feel, sharing your experience helps.  Why do you think I have my fibro page I need you more than you need me!!

Take a look at this site it’s got great tips and logs to help you plan living with fibro here 

Chronic fatigue and feeling angry

I average around 4 hours sleep every night which when I get in the number 5 is a cause for celebration in this house 💐. I have a pretty good routine:-

  • A hot bath with magnesium flakes and organic bubbles
  • No tv for a minimum of 1 hour before bed.
  • If I use my phone to update my Facebook page and blog I wear my uv glasses.
  • I only have one coffee before 7am
  • I don’t drink alcohol
  • I keep my room well ventilated with a temperature of around 19 degrees
  • My curtains are black and my walls painted dark
  • I wear ear plugs so no noise can wake me up
  • I sleep naked so I am not restricted by clothes
  • I never eat at least 2 hours before bed
  • I mindfully meditate daily before bed and every other day I undertake mindfulness yoga 
  • I have a lavender plant in my bedroom and place some fresh inside my pillow each night
  • I don’t drink water too close to bed so as not to wake in the night for the bathroom 
  • I have no switched on electrical items in the bedroom

I think that I have a pretty strict routine before bed and I really do feel that this has helped me wake up over the past 3 months feeling more refreshed than I have done in the previous 2 years.  But when it gets to about the 5th day of only have 3-4 hours sleep 15-20 hours in total over a working week I start to lose the will to live.  I cannot concentrate, I’m tired, have no energy, my cognitive behaviour starts to suffer.  I hate everyone and everything.  The fake smiles I have to put on at work, people asking me if I’m ok and I nod and say yeah I’m great (when all I want to do is shout out loud NO I AM FUCKING NOT!).

I do know that if I could ramp up my exercise and tire myself out more I’d sleep better, but how can I do that when I exercise then I literally struggle to go to work.  Pacing ah yes good old pacing.  I’m logging down what I do, how I feel etc but each day is different from the next which makes things a little difficult to track.  Some days I can sit for hours others minutes before I get pain.

I feel like I’m having some sort of mental crash, possibly from coming off citalopram and Amitryptyline?  Delayed reaction?  I’ve been off them 2 weeks.

Does anyone know of how I can get more sleep without resorting to regular medications?  Am I missing some vital information?

Pacing with fibromyalgia

I have kept diaries in the past to track pain which was hard to determine what caused it as I did not know I had fibromyalgia at that time.  Everything hurt like hell 😂😂

I started to keep a Fibro diary about 3 months ago to see what caused pain and exhaustion to try to help me figure out what I could do and not have a Fibro attack, crash whatever you want to call it.

As part of my mindfulness course I am trying a new one which is a much better plan:-


This lists, activity, time taken, a rating for whatever you are tracking, mine is pain and exhaustion as separate ratings.  1 being minimal and 10 being extreme.  Then I log a physical tension rating and whether I perceive the activity as either an increase ‘+’ or decrease ‘-‘ or no change ‘0’.

The whole purpose of this is to try to see what activities increase pain, exhaustion and tension or whatever your scale is tracking, then to try to reduce the length of time by 20%, to try to reduce the boom, bust cycle, so the overdoing it then becoming ill, making myself incapable of activities until recovered. 
For example if sitting for 10 minutes is ok but more is painful, I just get up at 8 minutes and do something else for a period of time to reduce the chance of pain.

This is great in principle as it can help me plan my day better but presently it hurts to sit and stand at work and the more walking I do the more exhausted I get 😂😂. Since adding the hot water bottle I can sit for longer.  So I have in fact found a compromise.

I am going to keep the diary for a few days until my next session to see what happens and see if I can change anything to ensure I don’t fall into the boom or bust cycle. 


There are some great tips on the 2 pictures above.  

I have even been using my mindfulness meditation at work at lunch time as I find it helps me control my exhaustion due to mental exhaustion.  I don’t even need to close my eyes anymore as I can do it staring at something with a soft focus.

The pain I have is lower back ache which has ramped up since I restarted my regular mindfulness yoga.  It’s just lactic acid building up in my body as I allowed myself to become immobile.  The more I exercise the stronger I will become and in the long term my pain will reduce.

I will never ever allow myself not to be able to exercise and I will not allow myself to get overweight as this would be irresponsible and showing contempt for my health and wellbeing.

Travelling at work. Massive fail

Well I’m sat on the train on my way back from London.  It’s a 2 hour train ride and a 15 minute bus journey to the 2 London offices.  It’s only Tramadol that’s took the pain levels from 8/10 to a 6/10.  My whole lower spine, upper back and shoulders (where I had my rucksack) right hip, groin and leg are hurting real bad.  I also feel like I have flu as I have that achy feeling all over.  I felt my stress levels increase as I sat in the train as I was in so much pain, I also felt the stress increase the pain in my back.

Mindfulness has taught me to concentrate on the ‘now’ I mean this will pass, just let the negative thoughts come and go and scan my body and surroundings and enjoy the moment.

I undertook 2 mindfulness sessions on my headspace app as it doesn’t need Internet access so dodgy train signals won’t disturb me and my stress levels have reduced.  The Tramadol has took the edge off the pain and I’m enjoying writing this blog, looking at the sunshine and the fact my dad is collecting me in an hour with my daughter and hopefully my mum.

Tonight will consist of rest, heat and my daughter will warm up my food my husband has left me already cooked in the fridge as he is working away.

What this experience has taught me is that I am not yet strong enough to travel to London but 4 months ago I did not have the strength to even contemplate it.

So when you have a bad day remember how far you’ve come and let it guide you to where you’ll be in another 4 months. 

Fibromyalgia and supplements

It took a long time for me to get diagnosed with Fibro, over 2 years after my operation.  That’s pretty fast according to research as the average is usually around 5.  Not surprising really as Fibromyalgia is a nervous system disorder and reliable positive tests for this condition has literally only just been tested…….  But even though there are a set of symptoms that we all feel; tender points, more pain in weak spots, extreme insomnia, skin tingling and burning and increased sensitivity to pain and psychological stresses plus exhaustion, there are also things that some get and others don’t, I don’t get IBS, but I eat an 80% natural diet?  Does that make a difference?  I think so? I’ve had migraines so severe I’ve ended up in A&E!  Why I stupidly drank 3 cans of coke at a party (something I never drink) others don’t.  I also get either overheated when it’s warm and get raynaud’s syndrome, others don’t etc etc.

There is one thing I have read over and over, we seem to have certain vitamin deficiencies; I was diagnosed with low vitamin D and an underactive thyroid and I put on 14 pounds (I don’t use KG 😂) in a year.  I started using D3 with calcium at a high dosage and a thyroid supplement:-


Within 6 weeks both levels were back to normal, I also started exercising by walking more and ate a high protein diet and I lost the weight in 3 months.  I also take vitamin E, CQ10, B1 and Cumin or Turmeric.

But there are many vitamins that we would benefit from taking, don’t underestimate the power of vitamins just because they are prescribed.  Read more here.  Most vitamins are more powerful than medication and have either no or minimal side effects but you just check with your doctor if taking medication.

I took the decision to ditch all regular meds as I was sick of the side effects plus no painkiller worked and I was now on Oramorph!!  You get used to painkillers and they stop working, they did me anyway.

I signed up for these:-


For those of you that have done you own research the content of these two supplements are the best I have ever seen!  I already take 6 of these vitamins at a high expense.  You can read here for more info. Read what each supplement does.   Now I’m not stupid I don’t look at this through rose coloured spectacles and think it’s a cure, there is no cure,  but I know a damn good supplement when I see one.  I have to come off 2 anti-depressants though as the sleep aid has 5-htp in it (serotonin) but hey I’m game, sign me up.  

I’ve researched this stuff to death and no one  has reported bad side effects apart from the usual ‘it doesn’t work’ but you have to give these things time and slowly increase up to the optimum dosage, if it says 2 X twice a day take 1 a day then 1 X 2 times a day and so on. Plus you have to give it at least 6 months to notice a difference. 

I have to order it from the USA but I don’t care and it may cost me £65 a month for both supplements together but you can’t put a price on good health!

What have I got to lose?  What with mindfulness, healthy eating and drinking, supplementation, exercise and no regular medication I know deep in my heart I will do this.  Plus I’ve took a less stressful path in my career into a role I did 20 years ago, stuff it, I put my health before my career.

I have to, there are other people out there living life to the full with this condition that lost everything including careers, husbands and homes and after years of struggle by making changes to their lifestyles they have done it.  So why can’t I?

Wish me luck and I hope you give me support through the good and the bad times.

What do I do to avoid Fibromyalgia pain and fatigue?

This is my personal journey into taking control of my life.  Overall I have felt a reduction in pain, brain fog, fatigue and exhaustion problems, along with reduced stress and anxiety.  You may be wondering how, am I taking some new tablets?  Nope.  I have mourned my old life and moved into acceptance.


Now don’t you get me wrong here I’ve been sliding around this change curve for about 2 1/2 years, 2 of those not knowing what was wrong, I just presumed I was still recovering from major back surgery, I’ve had severe back pain for 10 years now, I’m 41.   But it wasn’t until I requested to see a Psychologist and for the first time ever I spilled out everything, no holding back to a complete stranger that it clicked.  I was resisting, fighting it even, going through the whole ‘why me’ syndrome, why me? Because genetics, lifestyle and taking my health for granted created spinal issues and having that op which was such a massive shock I developed what we know and love to hate Fibromyalgia.

I can’t cure this, no one can, I will always have a malfunctioning nervous system but, can it be controlled? Can I learn to love this thing and work with it and build a different life?  Well that’s what this site is all about.  My journey and if I do achieve my goal then hopefully I can help others.

I read a fantastic article here, I do undertake every one of these activities apart from accupuncture as quite frankly I’d take a massage over this anyday and money does not grow on trees.  But that is a personal choice

Every single day I sit and use a mindfulness technique called a body scan or I used to keep a diary.  How does my body feel today?  I use this recording here. It comes free with my new book.  By doing this you get a sense of how you actually feel, I don’t dwell on pain, I assess my body as a whole and also my emotions, so now I know how I feel and make a judgement on how much I can do.

For the first time in over 6 months this week I managed 2 X 20 minute sessions of mindfulness yoga and 1 X 20 minute swim.  Hooray 


Exercise is vital to remaining healthy, keeping weight to a ‘healthy level’ keeping our hearts and lungs healthy and releases feel good chemicals called beta-endorphins, a natural opiod that is stronger than morphine.  I don’t know about you but sitting around waiting to die is not my idea of a life!! I love moving and if it means I’ll live longer and have less pain then I’ll do it.  Yes we feel soreness more but think long term.  Do it slowly. Swimming and mindfulness yoga are gentle but effective.  I know I used to be as fit as an athlete and tried it all with this condition.  Do not spend all day sat watching tv or in the Internet, get up and go outside, yes if it’s raining put on a coat and walk.  Also drink at least 2-3 litres of water a day and I promise you’ll never hardly get headaches.  Our bodies lose 2 litres a day and some people drink what coffee?  Drink water it’s free and healthy.

I take fortnightly massages at my home at £20 a pop, I’d take a massage over a takeaway any day!! I also use meditation to envisage a massage without leaving my bed, I will dig out my hypnotherapy recording I created.

Baths omg I’d live in one if I could.  I have a hot bath with magnesium salts (I buy 5kg at a time) use 2 cups in each bath at least every other day, as hot as I can stand, I use hot water bottles a lot, especially at work and my friend has a hot tub that kills all aches!! 

Bedtime routine is crucial, here’s what I do:-

Hot bath,

No tv for an hour before bed but if all else fails wear uv glasses

No computer or phone an hour before bed or use uv glasses and change phone settings to reduce brightness at night.  UV light reduces melatonin production in the body and keeps us awake.  My UV glasses below, cost less than tenner from Amazon.


I have one coffee before 8am and no more, I don’t eat chocolate (maybe occasional treat before lunch).  I don’t eat sugar at all if I can help it.  I don’t drink alcohol.  

I read and meditate before bed every night, use a book not a computer or use your UV glasses.

Do not eat at least 3 hours before bed as this will disturb your sleep.

I do not get up if I cannot sleep I use mindfulness techniques to keep calm and enjoy the rest.  Sitting up all night in a computer stressing won’t make you feel refreshed.

Mindfulness keeps my stress under control, reducing my medication has helped my mental health and joining this site has been beneficial here.  Facebook for Fibro Warriors.

Supplementation I will do a separate blog post about these.  Do not underestimate the power of supplementation, I believe Fibromyalgia warriors (I hate the word sufferers) need additional supplements.  How many of us have low vitamin D and an Underactive thyroid?  So did I before I started using supplementation now both are normal.  I use this and I only take 1 a day and my thyroid went normal in 6 weeks as the ingredients replace what is low within your body, without resorting to harmful pills. More of this later.

This is a long post but all of the above has been more effective than any medicine I have tried and believe me that is a lot!!

Good luck and feel free to ask questions.  Nothing happens overnight it take patience, resilience and persistence. 

Mindfulness book loaned by the NHS

The book is called Mindfulness for Health and is available through Amazon here
It has been loaned to me for the next few weeks whilst I complete the mindfulness course through the NHS.  All you need to do is ask your doctor for a referral and fingers crossed this will be available in your area, for free!

I was reading the first chapter and knew this to be true which is why I signed up to the course. Many research papers have been written about the ancient art of mindfulness and the proven reduction in the intensity of pain messages in the brain.  I know the medical community have shown imaging studies and the changes in brain pain patterns over time with the utilisation of mindfulness meditation.  For some pain disappears for others the pain reduces yo a manageable level.  Do manageable that we never notice it, well it certainly doesn’t stop us from enjoying our lives!

I know some of you may think this is crazy but if we think about it logically, what controls pain? The mind, signals through the nervous system and the mind, relaying messages back and forth.  So if we can train the mind, like we do our bodies in the gym to make them stronger, why can’t we train the brain.

Well we can, hypnotherapy has been used for years for making improvements in our lives.  Mindfulness is nothing new but what’s exciting about it is the fact the medical community are taking it seriously at last.

Once I have finished the course I will combine my hypnotherapy skills with what I have learnt through mindfulness and create a free recording for us Fibromyalgia sufferers to use and attach it to my soundcloud page so we can all enjoy it together.  I will write it in such a way that everyone will benefit as your mind will tailor the words to your personal situation 👌

You can read more about the book here