Apart from fatigue anxiety is second on my worst symptom list, certain activities make it worse and I think I’ve finally figured out why, from my personal experiences. When I am getting ready to go out, see family, go out for a meal or whatever we obviously have emotions of maybe anticipation or excitement etc and think with over fibromyalgia our over stimulated nervous system confuses these feelings and we internally confuse these feeling into feelings of anxiety. I get panicky, breathless, heart racing and anxious. Once you recognise this pattern it can be controlled. Don’t let these feelings stop you from going out and living, it may feel easier just not to go out but then we are giving in to this condition. Recognising the symptoms, learn not to fight it, but use relaxation techniques and deep breathing helps.
What I have also noticed is that the sensory over load from loud music and busy places can also cause anxiety. I had to run out of a friends house the other week as the music was too loud.
I tend to use ear plugs now that are especially made for noise reduction. You can still hear conversations but it cuts out the bass and loudness.
Depression is a part of fibromyalgia caused by the loss of your previous pre-fibromyalgia life, loss of friends, suffering constant pain, stiffness, anxiety, itching, skin sensitivity, food and chemical sensitivity. I stopped taking anti depressants last year and thought I was coping well but it hit me like a train. I asked the doctor to go back on them but at a reduced dosage of 20mg instead of 30mg. I feel so much happier. It’s well researched that a low dose of anti depressants increases serotonin and can reduce pain. Why do you think doctors prescribe Amitrypyline for pain relief at night. I don’t use this medication as the side effects were not worth the positives of taking the medicine. Read here for more info
All medication cause side effects as they are designed to change how we think and feel so always weight up the positives against the negatives and make your own decisions. DO NOT TAKE MEDICATIONS JUST BECAUSE THEY ARE RECOMMENDED. Not all doctors understand Fibromyalgia they are General Practitioners not fibro experts. I gave up several medications last year and I can categorically state my symptoms have reduced. It’s a personal choice so make sure you do your research and always give meds a minimum of 2 months to get the full effect.
Citalopram and Fibromyalgia study here.
I had a particularly rough day yesterday. I felt really negative and I seemed to slip into a dark hole. I wasn’t expecting it but I knew something was happening which is why I opted to work from home. It wasn’t just exhaustion!
Like an idiot I worked from my bed, it was not comfortable for long. I woke up this morning feeling like I’d been hit around the top half of my body with a baseball bat!! Next time I will sit at a desk and take more rests.
I had a very depressive day, I couldn’t bring myself to meditate and didn’t want to talk to anyone at all. I even went to sleep at 8.10PM on my own as my daughter was at her dads. I did manage 6 hours sleep in the 10 hours I was in bed. Yay.
It isn’t healthy shutting ourselves away or sitting hunched up in bed all day, we must keep mobile or the stiffness sets in and boy did I feel it today.
Working with this condition is by far the hardest thing I’ve ever had to do. The exhaustion, stiffness, aches and pains (my fusion still hurts), mental grogginess, anxiety and depression is tough. Giving up my dream job was hard, I was do good at it, but once this condition started to get worse I couldn’t do what was expected of me.
Do you all still work? What changes did you make to your working conditions?
Did you have to quit your job?
I won’t give up until I cannot get out of bed and I will not allow that to happen.
So, what did I do st work to improve my symptoms:-
- I was honest about my condition
- I work from home when I need to
- I book annual leave when I need a rest, I’ve learned from mindfulness and keeping diaries for pacing when I’m about to have a Fibro attack
- I am strict about working hours
- I will not skip lunch
- I drink a minimum of 3 litres of water a day
- I eat breakfast and lunch and I ensure I make my food as organic as possibly
- Don’t eat takeaways or food on the go from the canteen unless organic
- I do not drink any flavoured sweetened drinks
- I only drink one coffee a day
- I keep an action log
- I block out activities I need to do in my diary
- I have a hydraulic desk and specialist spinal chair
- I gave a lightweight laptop and a tablet for travelling
- I will not have meetings later than 3pm
- I try not to undertake back to back meetings I try to leave a 15 minute gap between meetings
- I have refused to travel to a meeting in London and insist on conference facilities until I feel stronger
- I registered for a disabled parking space
- I listen to a 10 minute mindfulness recording each lunch time
- I fetch a drink or go for a walk each hour to stretch my legs
Read some more useful tips here