Pain pain pain 

I am not going to lie, the pain is at an all time high as it feels like I’ve got the early stages of flu.  I felt rough this morning, had 2 cocodamol felt slightly better, went to the bike shop to get our new bikes and had another coffee, one more than my usual, felt great, Christ I felt high.  Then I crashed big time, I felt dreadful, exhausted and in pain.

I decided to go for a little trundle out on my new bike to learn how to use gears, I’d passed my CBT on an automatic bike.  Now the way Fibro works is every little amount of ‘stress’ which normally I’d just deal with, my head and body go into full on ‘fight’ mode, I either hold my breath or take fast small breaths, the pain starts and I feel exhausted.  I managed to deep breathe and kept it under control.


After an hour I went home exhausted and in great pain, like having the flu, especially in my lower back around where I have had it fused.  I went to bed, listened to 2 mindfulness meditation sessions, ate a chicken snack, used a hot water bottle and after an hour of being in agony I took 2 cocodamol, begrudgingly, as I do not want to rely on pain pills.

I’m sat in bed still, hoping I feel better so I can go round the block on my new bike to get used to it.  Then I have all night and day to relax!!  Wish me luck.

Do you have tips and techniques you use to get you through the early stages of a bad Fibro attack?

Medication and Fibromyalgia

I promised you all a list of the medications I have tried to help with with my Fibromyalgia symptoms, bearing in mind it took 2 1/2 years to get diagnosed, what I will also give you is MY opinion of the negatives vs positives of these and side effects, remembering we all have similar symptoms but we are all different and no two people are exactly the same. So please respect my run down as this is personal to me.  

I do believe Fibro can be controlled but my degenerative disease and Spondylothesis cannot, with that said I do believe I can slow down the spinal degeneration, after all it’s my body and it reacts to my mind.

Here goes, please bear in mind in other countries some of these drug names are different so please look them up on google 😘:-

Co-Codamol – good short term medication for pain, gives feeling of well being when first started and created intense constipation and sleepiness.  Physically addictive and must be weaned off as make you feel like you have flu.  Made me grind my teeth.  

Tramadol – best painkiller I have ever used, make you feel absolutely out of your head when you first use and driving or working was impossible.  Worked very well but became immune to effects after long term use.  Weaned off too quick first time and felt like I was dying, hallucinated and felt suicidal.  2nd time I weaned off them I did so very slowly over 2 months and coped much better.  I now take 1 occasionally and hope to never use long term again as physically very very addictive.  Caused dry mouth, confusion, daydreaming, constipation and intense itching to start with.

Lyrica – not a bad medication but gave me  bad brain fog and concentration issues. Did not work as well as Tramadol.  Asked to come off them as affected my work.

Gabapentin – worst medication I have ever took in my life and I would never take again.  Pre operation they were quite effective but after developing Fibromyalgia they were awful. I felt suicidal, brain fog was so intense I could not even remember my own date of birth, struggled to hold a conversation and as doses were increased was severely depressed and was scared to be left alone.  I wouldn’t give this to a Fibro sufferer as there are much better treatments out there.  I didn’t realise how bad they affected me until I stopped.  Yes nerve pain has increased but at least my mental health and memory are very good again.

Amitryptyline – a very good tablet to help with insomnia.  But again I am physically addicted to them so having to take 2 months to come off them.

Oramorph – brilliant short term painkiller for extreme pain; PMT and migraines.  Not to be used regularly.  

Citalopram – a fantastic anti depressant, this tablet not only helped me cope with recovering from major surgery but helped with pain relief as it lifted the black cloud that hung over me.  But very physically addictive, still weaning off these and it’s been 4 weeks now and I’m down from 20mg to 7.5, down to 5mg this weekend.  Again cause dry mouth, brain zaps when you move your eyes, lucid dreams and increase anxiety for the first 2/3 weeks.

Duloxetene – cane off this as the lucid dreams got do bad I could not sleep.  Now I don’t think this is a bad medicine at all but again you have to be weaned off with your doctors supervision so quite frankly I don’t want to take this and let it affect my already fragile nervous system and brain!

Diazepam – great for muscle spasms and panic attacks, not effective for long term use.  You can be affected when stopping and weaning must be done slowly.

Zopiclone – brilliant sleeping tablet but probably the lost addictive on the list as long term use will stop you from sleeping normally when you stop worse than any other sleeping tablet I’ve tried.  I still use these and take 1 a week, for example if I sleep for 1, 3, 3, and say 2 hours on 4 nights I become exhausted and risk an accident on the road or sick leave at work. Bi take a zopi and can get 5-6 1/2 hours sleep in one night.

Laxido – to combat Tramadol and co codamol constipation.  One sachet a day works very gentle and is a life saver, but any laxative no matter how mild is not good for long term use.

If I think of any more I will share.  All these tablets mask symptoms we suffer withFibromyalgia and  what I want to do is treat the symptoms and reduce their affects on my quality of life not just mask them with more pills.  ALL these pills have side effects and have created other issues. All these pills affect our nervous systems and that is why I am completely coming off them.  I will keep you posted as to how I get on 👌

Please read this link for more information on any of these pills and for my USA followers you will see the other brand names.