Trying to have a life and fibromyalgia gets in the way, sometimes

So I’m due at a 3 day festival this weekend.  I have a nice warm comfy camper to sleep in but the constant rain does cause havoc on my already fragile spine and fibromyalgia.  Last year was torrential rain and flooding for the whole weekend.  At this moment I don’t want to go I am so fatigued I hurt all over, even blinking hurts and writing this on my phone hurts.  I have 0 energy and today I spent my lunch break laid in the back of my camper in the car park at work just with my eyes closed resting.


The fatigue is crippling.  The constant rain is making my nervous system very over sensitive and I just want to curl up in bed for a couple of days.

I went to a gig at the weekend and I was having a great time watching a band I bought my husband tickets for last Christmas but I was overconfident and drank more than my upper limit of 3 beers and the 7 hour round trip has given me crippling fatigue, muscle and body aches and an awful headache.  I cannot make conversation and nothing is easing the pain.  It always takes 2 days to kick in.

I have to go to London for 2 days for work tomorrow and quite frankly I’m dreading it as I’m already feeling like I have the flu, I don’t it’s a flare up.

I need to focus my mind, think positive, it will pass.  I know I can do the festival I just need to do it on my terms.  Thankfully we have a couple of friends coming with us to keep my husband entertained so I can have plenty of rest.

No one knows how fatigue feels with fibro it’s like just starting off with flu and having the worst hangover ever and you also fell downstairs the day before so you feel bruised all over and it hurts to touch skin, I reckon that sums it up.  

It takes an hour to get in the bath that someone else to run for you then you have to rest after you’ve had a bath as your energy has gone ­čśé

So I’m going to get straight into bed and do some mindfulness and get focused.  Mind over matter.  I can get through London think of it as a mini break and the festival a holiday!! 

I can then moan some more next week and feel sorry for myself even more!

Get every possibility checked at the doctors

Since having a laparoscopy I’ve been kept awake and had to change my clothes several times and even my bedding due to hot and cold flashes.    The doctor sent me for a blood test to make sure my stomach wasn’t infected and to check my thyroid which both came back normal.  It’s probably hormonal so I’ve ordered a herbal supplement on the request from my doctor.

I have persistent digestive problems and have lost 7lbs in 2 weeks since my laparoscopy.  This is being checked out from the biopsies I had took whilst under anaesthetic.  Certain foods are setting this off so I am keeping a temporary food diary to remove the culprits.

I was took into hospital by the NHS a number of weeks ago with crippling pain with a suspected appendicitis, all the hospital found was a cyst and they put the increased pain down to my fibromyalgia.

I guess what I am trying to say is not to just take the diagnosis as ‘oh it’s because you have fibromyalgia’ I mean we know our bodies better than anyone and I knew there was something going on inside my abdomen.  Unfortunately the NHS told me to go through the long process of getting referred, waiting for a consultant etc.  I decided to go private through my healthcare at work and scheduled a laparoscopy.

When I went in for the laparoscopy my bowels were severely inflamed and so was my uterus and it was covered in fibroids, plus I have 2 extremely large internal varicose veins.  The consultant removed the ovarian cyst but didn’t want to take it any further until the biopsy results come back.
I’m not telling you this for sympathy I’m telling you this as an example of other things that could be going on inside your body that COULD contribute to your fibromyalgia symptoms.  Inflammation isn’t good for a person that doesn’t have fibromyalgia nevermind someone who has!!

If you feel you need further tests or need something investigating then I would recommend making an appointment pronto! 

10 Stress-Related Health Problems That You Can Fix

http://www.m.webmd.com/a-to-z-guides/features/10-fixable-stress-related-health-problems

Here is another fun quiz that not only educates but throws in a few surprises. I once read that 9/10 illnesses that a person sees a doctor for all relate back to stress! Now that’s scary. I do believe that stress brought on my fibromyalgia, my endometriosis and my inflamed bowel. It’s time to stop stressing and start living http://www.m.webmd.com/a-to-z-guides/features/10-fixable-stress-related-health-problems

Fibromyalgia and food 

When I was growing up I ate whatever was thrown in front of me not giving much thought as to what was in the food or how it made me feel.  When we are young our bodies can take so much abuse it’s unreal.  Read this article here for an insight into food and it’s affects on fibromyalgia.

When I got older I started to feel sluggish and started to get hangovers but still carried on eating whatever I wanted, luckily I love vegetables so these were high up on my menu.  When I split up with my first husband who only ever ate convenience foods and had a few run ins with family over feeding my daughter packaged, processed foods it was like a lightbulb going off in my head.  Not only was I eating ‘shit’ food but so was my daughter.


When I met my new husband he already had a taste for good food our diet improved but it still wasn’t great.  After I had a fall at work, my back problems got worse and after a second fall and my second disc falling to bits I had to take drastic action.  By this point I’d started to ditch milk for alternatives, I ditched bread, white products such as rice, bread, pasta and potatoes switching for healthier options.  But it wasn’t until after my fusion and I developed fibromyalgia as my body never recovered from the major surgery that I really changed.

Things I changed:-

  • Only 1 coffee ÔśĽ´ŞĆ and before 7am with a milk substitute but not soya read why here 
  • Ramped up my water consumption to 3/4 litres a day
  • Introduced herbal teas, not fruit (contains sugar) but chamomile and peppermint etc 
  • Dropped fruit to the occasional one off banana and occasional treat (again contain sugars) read why here 
  • Reduced consumption of red meat
  • Don’t eat rice or pasta but eat substitutes
  • Went organic as much as possible
  • Quit sugar, if I want a sweetener I use organic honey
  • Do not eat bread unless Rye Omega 
  • I don’t eat sweets or cakes unless made with natural ingredients
  • I bake my own treats using organic natural ingredients why? Read here
  • I do not drink alcohol ­čŹ║ it’s just not worth alcohol neuropathy.  Learn more here
  •  I do not drink fizzy drinks at all or aspartame if you do then you need to STOP read why here 

Now you might be thinking we’ll what can I eat then?  There are loads of foods you just need to be creative try things you have never eaten before.  Plus you need to keep a food diary.  Important things to add are:-

  • What you eat?
  • How you feel before you ate?
  • How you feel half hour after you eat?

It’s that simple!  I did this for about 3 months and by following that list above this is why I have less pain, more energy, I sleep 5-6 hours a night not 3-4


Other routines I establish from what I learnt from my food diary are:-

  • I started to get ill if I didn’t eat every 2-3 hours.  Once past that 3 hour mark and up to 4 I hurt all over, feel like I have flu, cannot concentration and get a massive headache.  
  • I have to eat within an hour of waking up or I get the same symptoms above
  • I cannot eat within 3 hours of going to bed or I cannot sleep (nervous system is far too overactive)
  • I have to eat smaller more regular meals.  If I eat big meals I feel sluggish and sometimes have to go to bed, I have even vomited before

It is up to you at the end of the day if you continue to eat the wrong foods and be stubborn about it you will continue to feel unwell ­čĄĺ.  If you have a family you need to sit them down and have an honest conversation about your health and how they support you.  I love my husband but he knows how ill I get if I don’t stick to my plan and quite frankly if he did not support me he would be leaving by the front door, that’s how serious I am about getting my life back on track!!

You have to put yourself first or what good are you to anyone constantly ill, always having to go to bed, not have a social life, not being well enough to work.

Many of you will have or are going through the ‘why me’ overthinking and that needs to be resolved to move on.  I have been there.  I now accept this condition and I’m learning to live with it. I’m not going to spend the next 20/30 years of my life waiting to die.

This site is amazing and I beg you to follow it here

Follow my blog to get direct messages into your email inbox where you could read, research and make up your own mind about my tips.  But remember if it works for one, it can work for you! 

Camping and fibromyalgia 

I have a campervan, it’s a T5 ex courier van my husband and I converted into a camper, a 4 birth complete with pop top, lower double bed, full kitchen, fridge freezer and cupboard space.  Leisure battery and blackout windows and blinds.

I love my van


I did not fancy doing much fancy this weekend so we decided to go camping to Buxton (half hour drive away).  It is tiring with this condition but we cope well.

I still undertake my daily meditation but no mindfulness yoga as I tend to do lots of walking which makes me tired.  It’s important to keep warm so I layer up especially at night and I do try to eat healthy.

I may treat myself to an extra coffee ÔśĽ´ŞĆ in the morning and I found somewhere that made homemade gluten free carrot cake ­čÄéyummy!  

I did over 12000 steps which did tire me out and I treat myself to a steak meal but it was locally sourced from a farm and not some prewarmed crap.

The only mistake I made was having 2 shandys which I felt the sugar kept me awake a little and I didn’t eat my breakfast within 2 hours of waking, it was close to 4.  By the time I got to eat I was freezing cold, felt like I had flu, could barely talk and had awful lower back pain (I always feel it in my fusion).  Within 15 minutes of eating I was warm, the aching had gone and my mood lifted.  I was actually crying eating my food I felt so ill.

You can go out and have fun with fibromyalgia but you have to learn your boundaries and stick well within them.

I must eat within 2 hours of waking and every 3 hours when awake, even if it’s just a healthy snack. If not I get extremely cold, feel like I’m getting the flu, cannot concentrate, communicate or even think straight.  My lower back, hip and right leg hurt real bad (all my weak pre and post operative areas).  My skin hurts to touch and clothes or wind blowing the hair on my body actually hurt me!

Overactivity brings on exhaustion but by me not giving my body the food and drink it needs for energy makes me very very ill.  This may not be the same for you but once you find out what that golden ticket is it’s like a revelation and for me its natural healthy food and plenty of water, minimum of 3 litres a day.

I have posted this site before but this list works for me here