There is a positive to Fibromyalgia 

I haven’t written on here for a while!  I don’t think the excuse I have is a good enough one but I’ll explain.

I always try to look for a positive in every situation no matter how ‘shit’ 

2 weeks ago I was awoken in the very early hours of Saturday morning with a deep pain in the lower right hand side of my abdomen.  It remained all weekend, I had no energy and late on Sunday my bladder felt like it was going to explode and I needed to urinate every ten minutes or so.  Sunday night I did not sleep at all and I rang in sick Monday morning.  I remained off sick on Tuesday too and I didn’t feel any better.  I went into the doctors where I was given a water infection test but it returned negative and the 3 days worth of antibiotics did not make any difference.   On Wednesday I attempted to go to work but on my return home I telephoned the emergency doctor as the bladder pressure worsened and my stomach was swollen.

I managed to get an appointment at 9PM my neighbour gave me a lift as my husband wasn’t home.  The doctor wanted to me to attend hospital with a suspected appendicitis. I was admitted at 11pm and taken to a ward at 2.30am with a very swollen stomach.


I spent the next 6 days in what I can only describe as hell!  Treat like a burden, over stressed nurses playing god with pain relief, generally backbiting at patients and at times being abusive.  Yes I did complain to the nurses and the matron.

The doctors were supposed to give me an emergency scan, I got one, after 48 hours, then it took another 3 days to give me a cat scan with dye injected in my arm.  Because I was on morphine I was full of gas so it was difficult for the ultrasound to work and the interval ultrasound only worked as I had to press on the top of my stomach and it was then we spotted a cyst on my ovary.

The Gynaecologist wouldn’t touch it as she said it had to be over 5cm even though I was in agony, my bladder affected, my bowels too and I only slept 5 hours in 6 nights total.  I was made to feel  like a hypochondriac and sent home with a one week sick note and a massive bag of tablets.  Then 2 days later I got a 2 week dick note and the reason was the cyst, ha so I wasn’t making it up!

Now I know I’m lucky as I’ve got private Heathcare through work and whilst I was in hospital I managed to get hold of my pain consultant who had treated my right SI Joint with injections. He confirmed he had suspected I had endometriosis and introduced me to his friend a private Gynaecologist at Thornbury where I had my fusion.  They squeezed me in the day I got released from hospital and I am now booked in for a colonoscopy to remove the cyst and anything else that shouldn’t be there.  Screw you NHS.

Now if I didn’t have fibromyalgia I probably wouldn’t have felt what was going on inside me for quite some time, I take it as a blessing that I am able to get this treated early and that’s my positive of having fibromyalgia! 

Plus don’t let the doctors gob you off and put every ailment down to Fibromyalgia you know you’re body better than anyone.

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Struggling with Fibro symptoms each month!

Wow today has been rough.  I usually have to deal with the pain with Oramorph but I’m resisting this month.  I’ve stuck to co codamol and Tramadol, the first 2 co codamol has done nothing this afternoon, I’m  hoping the Tramadol works.

I’m on my 4th hot water bottle today and the pain is bleeding through.  I know this won’t last, the first 48 hours are always rough, then the remaining 3 days I can deal with.

I did not get anything much done at work this afternoon as I could not think straight, so I came home.  I’m hoping an early start tomorrow will be just the ticket.

I was reading on the Internet about options for this as it’s not something women with fibromyalgia talk about much, but we should.   In particular ones that are coming up to menopause age, I’m 41, my mum was 38! Anyway there isn’t much advice apart from going back on the pill! Ah no thank you.  I am not putting more crap in my system.  No I’ll stick with my yoga (I did it last night), my hot water bottle and the odd painkiller.  Read here for more details.

When I feel this much pain I hate this condition, it’s as painful as the start of contractions in childbirth.  But from under taking mindfulness meditation I know it will pass, it’s not a permanent state.  Things will get better.