Fatigue and muscle weakness and pain getting worse

Sometimes it takes a while to realise that things are getting worse with your health.   I’ve been attending Download Festival now for 9 years and I noticed last year I was more tired and achy but this year was dreadful.  I only managed to walk into the arena once each day and I had to spend the rest of the time sat in the van.  I missed all the headliners.  The Disability camping was moved further away to a better site but it was a 50 minute round trip to the entrance on a hill.  I could not walk that far so when I went back to the camper I was done in.  Now I’ve always been able to walk around the festival but this year it was different.  I have took the decision next year not to go and I am going to start working on my fitness levels.  

I read an article about a woman that started doing intense interval training and it was by no means easy but she managed to reduce her fibro symptoms so much that she doesn’t feel that she has it anymore. I do believe this is possible and I can only imagine how ill she felt and how much blood, sweat and tears she shed.  Now obviously this is not an easy task but if one person can do it then it is possible and not impossible.  I used to do high intensity interval training even when my back was degenerating and it was only when I stopped training that my fibromyalgia symptoms started to come out.  I even trained after my fusion and it’s only when I started to hurt I slowed down training that I started to get more ill.  The less you move the worse it gets. 

Our bodies are not made to be immobile we were naturally born hunters always moving around, but as time goes on our lifestyles make us more unhealthy.  We have tv to watch, cars to move around, processed and fast food.  Drugs we can take to mask over health problems.

I am a real believer that food and exercise being the only medicines I need.  All medications have side effects and are not good for the mind or body.  I tried to come off anti depresssnts last year and use s more natural alternative and I became so ill after 3 months I went back into them.

Painkillers are not good for the body either and you get used to them so end up either on maximum dosage or on something stronger.

I have never suffered from such debilitating fatigue or muscle aches and weakness until this year and it’s getting worse.  Some days I can barely walk at all and I’m constantly having to rest after everything I do.  I have to plan all my activities to the finest detail so not to overload my nervous system.  I cannot stand loud music or bright lights and have to wear earplugs a lot, which is fine I have no problems with that.  I get sunburnt easier and my skin swells up so I bought some natural sun cream.  My scalp started to itch and I bought some special shampoo which reduced the itching.

The fatigue and muscle weakness is extreme.  I find myself doing less and less and from what I have noticed the fatigue, weakness and pain is getting worse.  It is a battle of the mind as our mind tells us to do less as we hurt, but it is the wrong decision.

The less you do the weaker the muscles get, but it is much more painful to exercise as muscle pain can be very extreme with fibromyalgia.  When I used to regularly work out I used to hurt from the gym but I liked it as I knew I was getting stronger.  But with fibro the pain is sometimes so bad after working out that it can make me cry and my whole body throbs and every attempt to move is excruciating.  In order to get stronger I have to keep pushing so the pain from working out will last weeks or even months.  You have to start slow, I have managed to do 3 ten minute workouts on the power plate this week.  Next week I am going to build up to 4.  I am also trying to walk every day and I have stopped using the lift at work and take the stairs.
Next year I am not doing the Download festival and I am hoping to get back into interval training.  I want to test out the theory of regular exercise reducing fibromyalgia.  Exercise can help reduce anxiety, depression, increase mental alertness, reduce insomnia, reduce muscle weakness and aches and pains.  Over time it can also help with fatigue.  In the short term it will get worse but what have I got to lose, I hurt anyway whether I move or not.  I have felt a dramatic worsening of physical symptoms from doing less exercise so my moving less to ease the symptoms have made it worse.  The only way to change what we have is to do something different so that it what I am going to do.  Here is some good tips of exercising with fibro here 

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Core strength and fibromyalgia 

I used to undertake core strength and body weighted interval training 5/6 times a week, I loved it!  I was so strong both mentally and physically.  It is still my goal to get to my core strength back to a level where I feel strong.

Working your core strength is essential, I spoke at length about this with my physio and she said she was shocked at how many body builders couldn’t even hold a 30 second plank!  If we all had core strength we wouldn’t have so many back issues!


I used to be able to hold about 6-7 30 second planks in one session. Core strength is essential in keeping a strong back and a healthy back is essential in keeping your whole body strong and injury free.

In order to embark on this kind of training with fibromyalgia you have to do this slowly as the lactic acid will build up and hurt like hell.  This is why I’ve switched to mindfulness yoga for the next year.  Believe me my lower back feels like I’ve been kicked in the back at the minute, but it will ease once I get used to twisting again. ūüėā

We cannot afford not to exercise, immobility is not an option for me and I feel like I am becoming something I always hated.  Whenever I do a chore now I’m sore and with this condition the soreness is extreme.  Our bodies were not created to just sit down all day and I damn well am not going to grow old hiding my body under baggy clothes.  I want to grow old feeling as strong as an ox, able to take care of myself.  Not sat down pointing at stuff as I cannot even get up to fetch it.  (My poor husband),  I want to be able to ride my bike, enjoy gigs and festivals without having to take a week of work to recover.  

Read the article here.  My #fibrogoals are to slowly build up to a minimum of 30 minutes of mindfulness yoga every day, then I shall move into body weight exercising then back into weights.

What are your goals?  And if you haven’t got any then why not?