First week post op

Recovering well! My right arm is hurting pretty bad; it’s constantly aching, feels very weak and it’s hurting to text and use my right hand. But the right hand side of my neck has been cut open so it is to be expected.

I lost my Fitbit and broke my other one so I treat myself to a new one, the special edition new versa.

It will help me with my recovery.; as it tracks my sleep, or lack of!! Mobility too. I am just in the process of getting it set up to nudge me to stand up and move around more………..setting a minimum steps each hour.

I am taking 30mg of oral morphine twice a day, 10 mg Oramorph (liquid morphine) and paracetamol in between these doses, every 4 hours.

I’ll finish this off later as need to rest my hand, I am struggling to text………..

I’m back!! Been in quite a bit of pain all day, in fact a lot of pain. Obviously made worse when I am moving, but, also aching and throbbing really bad when I don’t move. The painkillers aren’t working as well as they were a few days ago. I am only sleeping 4 hours once every 2 days. Which is flaring up my fibro and just generally making me feel like absolute hell………. Trying to get comfy is proving very challenging.

I actually thought this recovery was going to be simple compared to the last operation. I felt much more mobile and in less pain in hospital than the last fusion. The pain is changing though. All the anaesthetic they ply you with has worn off completely and the what I only can only describe as,; internal bruising sensation (as this is how it feels) has comes into play. I’ve also had to resort to super strength laxatives after the general anaesthetic. I lost 7 lbs in weight in just over a day. πŸ˜‚πŸ˜‚

My daughter has had to do more chores as I now cannot clean downstairs either. My husband has had to run around like a headless chicken doing urgent items on my lists; he loves my lists I leave laying around πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚.

Dave and I watched motoGP today and both wore our shirts!! Dave had to help me get dressed as I could not get a t shirt over my head!!

I look rough as hell in the picture above, no make up and not much sleep!! It took my mind off things but not the pain! You know you’ve got bad pain when something your passionate about doesn’t help!!

I have spent a little bit of time reading up on other people’s experiences recovering from an ACDF (double fusion). This has made me feel more positive. We all heal differently and some of us have multiple issues. I find it useful to go into surgeries with my eyes wide open as this reduces post op stress and anxiety. This site is amazing here.

This site has some really interesting myth buster information about neck collars. My consultant won’t use them as he said that they restrict movement too much and are counter effective in recovery. Trouble is sometimes I forget like today, looked up and oh dear the pain was excruciating for over an hour πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚. Click here

If this pain continues tomorrow I will have to ring the doctor as I need sleep and have lost 3 nights sleep in a week already, this means I am probably going to get germs!! That would not be a great idea right now…….,,

Advertisements

First week post op

Recovering well! My right arm is hurting pretty bad; it’s constantly aching, feels very weak and it’s hurting to text and use my right hand. But the right hand side of my neck has been cut open so it is to be expected.

I lost my Fitbit and broke my other one so I treat myself to a new one, the special edition new versa.

It will help me with my recovery.; as it tracks my sleep, or lack of!! Mobility too. I am just in the process of getting it set up to nudge me to stand up and move around more………..setting a minimum steps each hour.

I am taking 30mg of oral morphine twice a day, 10 mg Oramorph (liquid morphine) and paracetamol in between these doses, every 4 hours.

I’ll finish this off later as need to rest my hand, I am struggling to text………..

I’m back!! Been in quite a bit of pain all day, in fact a lot of pain. Obviously made worse when I am moving, but, also aching and throbbing really bad when I don’t move. The painkillers aren’t working as well as they were a few days ago. I am only sleeping 4 hours once every 2 days. Which is flaring up my fibro and just generally making me feel like absolute hell………. Trying to get comfy is proving very challenging.

I actually thought this recovery was going to be simple compared to the last operation. I felt much more mobile and in less pain in hospital than the last fusion. The pain is changing though. All the anaesthetic they ply you with has worn off completely and the what I only can only describe as,; internal bruising sensation (as this is how it feels) has comes into play. I’ve also had to resort to super strength laxatives after the general anaesthetic. I lost 7 lbs in weight in just over a day. πŸ˜‚πŸ˜‚

My daughter has had to do more chores as I now cannot clean downstairs either. My husband has had to run around like a headless chicken doing urgent items on my lists; he loves my lists I leave laying around πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚.

Dave and I watched motoGP today and both wore our shirts!! Dave had to help me get dressed as I could not get a t shirt over my head!!

I look rough as hell in the picture above, no make up and not much sleep!! It took my mind off things but not the pain! You know you’ve got bad pain when something your passionate about doesn’t help!!

I have spent a little bit of time reading up on other people’s experiences recovering from an ACDF (double fusion). This has made me feel more positive. We all heal differently and some of us have multiple issues. I find it useful to go into surgeries with my eyes wide open as this reduces post op stress and anxiety. This site is amazing here.

This site has some really interesting myth buster information about neck collars. My consultant won’t use them as he said that they restrict movement too much and are counter effective in recovery. Trouble is sometimes I forget like today, looked up and oh dear the pain was excruciating for over an hour πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚. Click here

If this pain continues tomorrow I will have to ring the doctor as I need sleep and have lost 3 nights sleep in a week already, this means I am probably going to get germs!! That would not be a great idea right now…….,,

Changing pain

General anaesthetic (GA)is never good for the digestive system, if you know what I mean! I’ve doubled up on laxidos and last night had my favourite Indian takeaway, but to no avail πŸ˜‚.

I feel quite comfortable, the morphine is helping really well, I’ve doubled up on the tablets and the Oramorph liquid. I slept pretty well, feel very positive. The pain is changing, it hurts to breathe, I have bad indigestion, but this is normal after a GA.

Ha ha I wrote the above yesterday!! This is now, 3.30am on a Saturday morning. I am shattered, can’t sleep as never can on lots of meds, neck and back is uncomfortable! Might get up and chill out, motorbike racing is on tv soon πŸ‘. I could always have a mid-morning snooze! I keep forgetting that the op was only 3 days ago and not 3 weeks ago.

My body clock is all over the place, I need to relax, as this is why I am off work!! I’d love a massage but could not get comfy yet in any one position…….

Stuff it I’m going downstairs, might do some meditation, listen to some music and relax. Maybe have a posh coffee β˜•οΈ.

I am so god damn sore arghhhhhhhh, yet I am soooooo tired. My eyes are rolling whilst typing this πŸ˜‚πŸ˜‚. Speak soon all

Processed food, poor food choices and fibro

I never expected foods to affect fibro as much as it does for me. We all know that fibro is all about how our nervous systems work. I like to think of it as a very sensitive short circuiting computer system. Our nervous system has its tentacles in everything in our bodies, whether it be physically or psychologically, read here for more in-depth details.

You already know that if you go on an alcohol and takeaway binge that you will feel tired and sluggish for a few days. With fibro it’s the same, only foods and drinks you never thought would affect you, will.

Diets don’t work with fibro either you must remove all potential food groups and stick to a basic diet of certain meats, all fish, green vegetables and seeds and berries plus no caffeine for 3 weeks. This is the purest basic paleo (caveman) diet there is.

You can only eat the pink foods above but as much as you want to for 3 weeks. For the first 3 days you feel absolutely dreadful as your body craves all the other stuff you have been eating and drinking. I had a bad migraine and had to take 2 days off work!! But then I felt fantastic!!

After 3 weeks you can try adding one food in a day for 2 meals; breakfast and lunch; if you feel well continue to eat it, if you gain weight the day after (water retention) don’t eat it again. If you feel ill; increased muscles pain or fatigue don’t eat it. If you only get a mild symptom that goes quickly then it’s an occasional food!!

These foods are what I started introducing first…….

The ones I crossed out I don’t eat anyway. The above foods have a high risk of you having a reaction.

I felt absolutely amazing on the diagnostic diet and lost 29 pounds in weight. But any food that causes a flare up, the reaction is so severe now it’s puts me in bed in agony, but it’s short lived as I don’t eat it again.

Foods I cannot eat without getting ill are:-

  • Anything containing large amounts of sugar
  • White rice or white pasta
  • Alcohol
  • White bread
  • Any processed foods
  • Eggs
  • Chicken unless it’s organic
  • Anything containing ‘E’ numbers
  • Anything containing gum
  • Anything containing MSG
  • High sugar fruit such as mango
  • No processed sauces, tins or jars

Foods I can eat rarely but never more than 2 days in a row:-

  • Anything containing potatoes
  • Indian takeaway
  • Brown bread
  • Brown rice or pasta
  • Nightshade foods
  • Crisps
  • Dark chocolate (above 85%)
  • Any diary
  • Plain vanilla ice cream

I can however eat any meat but not too much red, any fish, any vegetables and fruit that is not high in sugar. I can eat organic snacks such as fruit bars etc….. organic tins, jars and sauces.

I know some of you may think that you don’t have the energy to cook fresh all the time, but you have to get creative and overcook so you can save meals to warm up other nights, use a big slow cooker and let it cook itself. Or failing that get someone else to cook, my husband does all the cooking and when he’s away he over cooks foods and saves them into containers so I can warm them up to save my energy.

Symptoms that have reduced or in some instances disappeared:-

  • Fatigue
  • Gastrointestinal issues
  • Monthly pains
  • Moodiness
  • Headaches
  • Muscle pain
  • Fatigue
  • Itching
  • Rashes
  • Brain fog
  • Insomnia

Etc

If I eat something my body does not like some of the symptoms above get so severe and come on within an hour of eating it, is very severe but lasts a shorter time.

What I did not realise is that due to me eating foods and drinking alcohol constantly this is why I always felt ill, could only sleep 0-3 hours a night and could not stop having bad flare ups, they were increasing and becoming more severe.

This is why diets or just cutting out one or two foods don’t work, you have to give yourself 3 weeks on the bland diet to clear out your system and remove all toxins. Then take another month to add one food in a day, not several at once. It’s not easy but I have had a better result from changing my diet than any pill I’ve tried and believe me I have tried them all.

Why don’t you try it? What’s stopping you? If you don’t do something different you’ll never change your symptoms or the severity of your fibro. You need to find what works for you and stick with it.

Am I a saint? No bloody way I drank gin this weekend, first time in 4 months and ate 2 takeaways but food I know I can eat such as lamb and fish. Yes I feel fatigued and have muscle pain but it will go……..

Why does this work? Because we absorb food into our immune system, glands and nervous system through our intestinal wall it’s that simple. Bad food makes you feel shit! Good food reduces symptoms.. …. read here for more info and try it out.

How can you fix insomnia?

Ha if I knew that I’d be a millionaire!! Now here’s the thing; Fibromyalgia causes insomnia and insomnia is one of many drivers in increasing fibromyalgia symptoms. I once read an article about some controlled tests that were performed on ‘healthy’ volunteers; they were kept awake or continuously awoken over several days and then tested how they felt mentally and physically whilst also performing cognitive tests, all of the volunteers showed symptoms of fibromyalgia, even down to increased levels of pain. 
I go through periods of insomnia and I track my progress with a Fitbit. I actually only used to sleep 3-4 hours a day until I established healthier pre sleep activities and then I increased that average to 5-6 hours, I will go into that in more detail in a second. But then insomnia creeps back in and my average drops back down to 3-4 hours. Read more here 

You’re probably wondering what I did differently to help me sleep? These are what I can remember:-

  • Reduced caffeine intake to 1 cup a day (I’ve gone back to 2is this why I now cannot sleep?)
  • I quit drinking alcohol
  • I never eat within 3 hours of going to sleep
  • I have a warm bath with magnesium flakes every night before bed
  • I take a vitamin super supplement each night that includes melatonin, chamomile and 5htp amongst others
  • I undertake some form of exercise 4/5 times a week either yoga or my power plate, yes even when I feel rubbish, mind over matter
  • I practise meditation daily, especially at night (now this has most definitely slipped off my radar just before bed, I need to start doing it before bed again)
  • I wear UV glasses when it gets dark to cut out the blue light from the tv and my phone
  • I drink 2-3 litres of water a day but never 90 minutes before bed
  • My bedroom is kept cool at around 19 degrees maximum
  • My bedroom is completely dark with blackout curtains
  • I wear earplugs for complete quiet
  • I quit taking medication every night for insomnia
  • Reduced consumption of chemicals by using organic
  • Reduced consumption of non natural foods, do not underestimate the effects of a poor diet!!

Now around 3 weeks ago I started to feel ill like I had some kind of virus, it wasn’t a cold or flu (thankfully my immune system always fights these off plus I take a super supplements with 21 different vitamins in). Ever since I had this short lasting virus I have not slept for more than 2-4 hours a night and this has set off many fibromyalgia symptoms;

  • Headaches
  • Restless legs
  • Nerve pain
  • Muscle aches and stiffness (like having the flu coming on)
  • Mood swings
  • IBS
  • Irritability
  • Pins and needles or burning on my skin all over
  • Cognitive issues; memory and concentration issues
  • And one of the worst; fatigue which I feel like I’ve got a constant hangover, coming down with flu type feeling
  • Depression

All this just because I cannot sleep!!

It’s a vicious circle as sleep deprivation increases symptoms of fibromyalgia and fibromyalgia causes insomnia. Due to having a near miss in my car I even asked my doctor for a couple of sleeping tablets, but they did not work πŸ˜‚, I have to laugh.

So what should I do, give in, quit, start feeling sorry for myself? No, that won’t solve anything. I will tackle this problem like I do every other problem, by being practical. The solution does NOT lie in regular meds again, it lies within me. I just need to figure this out. I’m going to cut down my caffeine to one a day at 6.30am, stop watching tv half hour before bed and do some meditation/mindfulness yoga and when I cannot sleep I am going to start getting up and meditating rather than tossing and turning in bed all night.

The hardest thing about having insomnia is not being able to sleep in my own bed as I keep my husband awake 😦

If you read this and can relate don’t give up, don’t resort to meds as that’s just a bandaid, use them sparingly and take a long look at your daily activities and lifestyle as the key to removing insomnia will be in there somewhere.

Fibromyalgia, Insomnia and Depression

If you don’t sleep well, have you ever noticed how sad you feel the next day when you have fibromyalgia?  Every little thing that doesn’t go my way is like the end of the world.  I hate everyone that doesn’t have this condition and I don’t have any interest in doing anything.

The thing is with this condition it’s like it amplifies everything; emotions, pain, light, sound, everything.  It’s like I’ve forgotten how to laugh at things.  

Constant insomnia is very bad for your mind and body especially with fibromyalgia, not only can it cause your mood to dip but it can increase nom specific pain, tingling, restless legs, body temperature regulation and it steals your sense of humour.


I’ve tried meditating today and I can’t sit still as I have restless legs which I also have in my arms too.  so I went for a walk to see if I could use mindfulness techniques as I was walking, it did help.  I came back with a clear head.

Positive affirmation we also a great way to snap out of the doom and gloom thinking.  But out loud don’t just say it in your head!!  Sat out loud:-

  • I am getting healthier
  • I am happy
  • I love my body 
  • I love me
  • I am loved
  • I am improving every day

I am sure you can think of many more?

So tonight it’s time to have a red hot Magnesium bath, do some gentle mindfulness yoga and meditate in the best position I can even if that’s sitting up, moving it standing!