Diagnostic diet part 2 and Fibromyalgia 

As promised, I would send you an honest update on how my diagnostic diet is going.  I started before I spoke to the consultant and completely ditched all processed food, so nothing came out of a packet.  I lost 7 lbs in 2 weeks and felt so much better; less fatigue and reduced muscle pain.  

I went into the diagnostic diet for 2 weeks to cut down my diet to a very basic bland hunter gatherer type.  This basically removes all potential foods that could cause a reaction with my nervous system.


You only eat the highlighted foods for the first 2 weeks.  You track your symptoms and at first you feel worse; giving up coffee gave me a migraine.  I lost 12 pounds in 2 weeks!!  

After the first 2 weeks my daily headaches disappeared, my fatigue was reduced, my muscle pain went away and the nerve sensation issues I had like tingling, itching, pain upon touching disappeared.  

I was just coming out of a flare up when I started the diagnostic diet and my sleep was terrible; 7 hours over 3 nights.  I asked for 5 days worth of sleeping tablets and usually they take my sleep from 3/4 hours to 4/5 but this time they worked great.

It took about a week to get over stopping the sleeping tablets (this is why I don’t like to take them)! Now I’m sleeping much better, deeper and longer 5/6.5 hours. 👍

Switching to fresh food only I lost a total of 1 stone and 7lbs in a month and never went hungry.

My moods are better, less extreme and my menstrual cycle was less severe.  I haven’t had digestive issues either.

The next phase of my diet is to slowly start bringing in the rest foods not highlighted on the photo above, one by one and track symptoms.

So far I’ve been able to eat asparagus, grapes, veal, tuna steak and tomatoes.  

I’m still not able to exercise until I’ve finished the next month as this could skew the symptom tracker.

I can’t wait to restart proper exercising as I’m so weak, getting out of breath walking up hill or up or down steps.  I couldn’t even keep up with my 67 year old dad!

It’s not easy as you have to have willpower and you have to track everything; symptoms and weight, which will start to increase if my nervous system reacts to it.

I have a comprehensive stool analysis kit to do and send off but I need to wait till I get paid as it’s £160 for the analysis; 3 collections and I have strict guidelines to follow including mixing with liquids, dealing and posting lol.  I have a list of other tests to do too that I have to pay for as the NHS has refused, simple blood tests.

I am willing to do anything to feel better and the Airedale Allergy Clinic here have done more for me than the NHS have in over 3 years.  The NHS don’t have the funding or support to investigate or locate cures for conditions like Fibromyalgia.  The US are way out front in this area as it’s about making money and a cure or even medications or treatments would rake in millions.  GPs are trained to give us meds and there aren’t any specialists only pain or arthritic specialists available in the UK, we are sent to these for more band aid treatments for our symptoms.  What we need is locating and dealing with the root cause!! 


Feel free to ask me any questions!  Or join my page here for more insights and research sharing.  

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My first consultation at Airedale Clinic

Airdale are a private clinic that specialise in finding out what chemicals and foods affect our immune systems and cause medical problems, treating the root cause rather than masking the symptoms with medications.  You can read more about the great work the clinic do here.

When I was tracking my symptoms with a log I found a number of things that affected my symptoms of fatigue and stress:-

  • Sleep deprivation
  • Stress
  • Over doing things
  • Food and drink
  • Chemicals 
  • Hot weather
  • Dehydration
  • Injuries and other painful medical conditions

But some of these things affected each other too, for example certain foods affected my sleep, an injury affects my fatigue etc.

The first consultation was done over Skype to reduce my need to do the 1 1/2 hour round trip to Keighley which I would not have been able to manage.  It was with the Co-Director Dr Apelles Econs, lovely man, very caring and understanding and very knowledgeable about autoimmune disorders and allergies.  He gave me a frank explanation of how fibromyalgia works and affects the nervous system and what can be done to improve symptoms.  I have attached my treatment plan for you to review below:-


I want to share my journey with you to allow you to see what I am trying and what improvements I have.  There is no cure for fibromyalgia and the NHS are only interested in giving us pills and potions to band aid over our symptoms, not to treat the root cause.

The initial consultation was £175 but you can’t put a figure on good health.  The GPs only know how to prescribe meds or do referrals to specialists, but in the UK there aren’t any for fibromyalgia.

I recently had a bad flare up due to injuring my knee falling off a motorbike in training, I actually fractured my knee and again it took 2 months under the creaking NHS to find this out, as I had to wear a leg brace for a month restricting my movement the immobility flared up my fibro and back pain to the worst levels I’ve ever experienced.  

My healthy diet lapsed due to laziness and I put on a stone in weight and felt dreadful.  You are what you eat after all.  I gave myself a kick up the backside and ditched the processed foods and lost 7lbs in 3 weeks, since starting my diagnostic diet as recommended by the Airedale Clinic I’ve lost a further 3 pounds in the last 5 days.  At first I felt lethargic, had bad headaches (gave up coffee), could not sleep at all and my aches and pains got worse.  But I’m now on day 5 and I’m feeling a little better, I was in another mini fibro flare up due to overdoing things at work but I feel the diet is helping me recover quicker.  The only problem I have right now is very bad lower back ache which is hurting every time I remain still, especially when sitting and it’s worse when I lay down.  The only foods I can eat are detailed below, highlighted:-


The diet helps to detect whether food is affecting my condition to track how I react to the natural diet. It is only for 2 weeks and quite frankly I would do anything to feel better, even as one person put it yes I would sell my soul.

This is one of the pages out of my diet book:-


I have also obtained my full list of tests and results to share with the clinic from the NHS and I have a list of potential tests should I want to go ahead with them privately:-


I have ordered the stool test to start with until I know whether I have had any of these on the NHS, which I doubt as the NHS wouldn’t treat the outputs of most of the above tests.

I have a follow up consultation on the 11th to discuss how I’ve felt the diet has gone and discuss next steps.  Thankfully sebsequent consultations are only £90.

I have bought a vitamin B12 spray as this vitamin can help with fatigue, aches and pains, the tablet form is not adequately digested by our systems, but the spray works best, the gold standard are vitamin B12 injections.


I will update you on my progress with honesty and complete openness.  Maybe there is something I am doing that you would like to try.

Please feel free to ask me any questions, my Facebook page is updated on a more regular basis and is available through my blog.

I don’t want to take morphine

I injured my knee by stupidly taking out my armour due to it being very hot 27 degrees on my bike training day.  I had a fantastic lesson and was feeling very confident for my test which I had booked in about 10 days time.  I was on my last practise run and came off the big motorbike bashing the inside of my left knee on the bike.  My leg swelled and I rested it, my leg went black but I thought it would heal.

I went to work in London and walked a short distance to my hotel as the weather was beautiful.  Half way back my leg was very painful and I could barely walk.  I checked into the hotel and struggled up to my room.  I sat on the bed and my leg swelled, the knee looked like it had a bone sticking out on the inside.  6 hours in A&E in London is hell,iv Morphine and gas to get an X-ray, no break but a ligament injury.  I was released at 2.30am on crutches wearing a leg brace for the next month.

Anyway the point of this story is that I’ve had to stop exercising and the use of the crutches has resulted in my fibro returning back to the levels it was at about 15 months ago!

Tramadol and Oramorph are not touching the knee pain so the doctor has put me onto Morphine tablets, they have helped but I’m still in tramadol withdrawal which is horrendous.

I am not staying on Morphine and the last few months of my increasing painkiller consumption has made me realise they are no good long term.  I don’t just have fibromyalgia and the my meds are to reduce the pain I have from a number of conditions, I only developed fibro due to the back surgery I had.  I have degenerative disc disease, spondylolisthesis, endometriosis and pelvic congestion.  The pain I get from these conditions are made worse through having fibro.  Where do I go from here back onto Fentanyl patches?  No bloody way!!

First thing I’m going to do is speak to the doctor and ask them for medical help to get off these meds.  I’m going to revert back to the strategy I started last year; mindfulness yoga, meditation and very very slowly build lung up my exercise to interval training again plus I need to overhaul my diet.  Anyone with fibro knows how painful it is restarting exercising as the muscle aches are intense, nothing like anyone can imagine, it’s like having the flu but ten times worse!

Food is a very underestimated medicine.  Eat shit and feel shit!!  Fibro makes us very sensitive to food ingredients and if you read what you eat, some of the contents and unrecognisable.

Once I feel well enough to start exercising again I’ll post up what I’m doing and let you know how I get on with coming off meds again!!

Fatigue and fibromyalgia 

I have to be honest fatigue and anxiety are two of my most crippling symptoms at the moment.  I have had a busy weekend with a motorbike lesson Saturday morning, loading up the campervan for camping and unloading on return then I went out on my motorbike 3 miles to watch a stunt show for 2 hours.  Monday I felt great, Tuesday and Wednesday morning I have felt by far the worse I have ever felt in terms of fatigue.

I open my eyes and the stiffness and pain is extreme I feel it in every part of my body all over my skin, like I’m severely bruised, I cry lots more out of frustration I guess.  I struggle out of bed and it takes me between 90-120 minutes of waiting for my tramadoland the caffeine from my coffee to kick in.  I hate this feeling more than anything it’s horrible, getting into work is a massive struggle, today I have booked a days annual leave as I don’t even have the energy to get up.  I’ve been laid in bed for 3 hours now!!

Fatigue is a difficult one it’s all about pacing and you have to keep a diary of activities to learn how much you can do and when to rest to reduce fatigue flare ups, fatigue never kicks in straight away it takes my body 48-72 hours for it to kick in but when it does it floors me.  It’s a frustrating experience as I really had fun with my family this weekend and now I am paying the price.

Tips for controlling fatigue which I do not always follow hence why I am feeling ill today:-

  • Learn pacing; this means stretching out activities over a longer period.  I’ll give you an example I used to hoover the whole house in one go, now I have a lightweight rechargeable hoover and I do a room a night.  
  • Find easier ways to do things.  All my shopping is done online and delivered, any other essentials are fetched by my daughter and husband
  • Hire a cleaner or ask a family member or friend to help.  I am a proper clean freak so clutter and dirt stress me out so I pay my daughter a wage to clean.
  • Find ways to rest and this does not necessarily mean go to sleep, napping messes up your sleep health.  It means finding a way to relax which could be watching tv, reading a book, doing some crafts, sitting in the sun, etc etc
  • Meditate, get on the sofa and put on a YouTube and look up mindfulness meditation close your eyes, switch off your phone and follow the instructions.
  • If you are feeling down then have a good cry and get it out your system then move on, it’s my favourite way of getting all the frustration out!  Don’t let it ruin your day!
  • Stay positive, focus on what you have and what you can do not what you can’t.  I know this is hard but life is beautiful and when fatigue kicks in it’s overwhelming but we all have great things in our life even if it’s just the blue sky and sun today.
  • Keep telling yourself it will pass because it always does.  If needs be write it down ‘it will pass’ on an A4 sheet of paper and stick it on the wall to remind you.
  • Increase your painkillers to help you get through the flare up but remember to reduce back down or you could end up on a slippery slope of ever increasing pain meds.
  • Take a hot bath, not a shower and use magnesium flakes as they soak in your skin, at first you will itch and go redbut as your magnesium levels increase in your body this will stop.
  • Eat healthier than ever before, poor diet choices will increase fatigue.
  • Do not drink any alcohol as this will make you feel worse!!  The alcohol turns to sugar and is toxic to your liver it will only prolong the fatigue.
  • Get a massage it releases and removes toxins in the body and you will feel the benefit later on in the day.
  • Go and sit in the sun and top up your vitamin D levels naturally.
  • Remember your vitamins.
  • Talk to someone about how you feel, sharing your experience helps.  Why do you think I have my fibro page I need you more than you need me!!

Take a look at this site it’s got great tips and logs to help you plan living with fibro here 

Pain flare ups with fibromyalgia

I find there are a few reasons our bodies hurt, for me I’ve put them in to 3 categories:-

  • Psychological; for instance when I get stressed or I am under pressure, say from work, my brain then relays this into physical pain into my weak spots – my spine.
  • Not using pacing; doing too many activities and not resting enough, again my brain warns me by creating physical pain, mostly into my weak spots, my spine or all over aches and pains in my muscles or skin pain by touch, allodynia.
  • An injury, say from twisting my body or falling over.  I find that with fibro I hurt a lot by just simple acts I performed before I had fibro which might never have caused any lasting pain.

It’s important to understand which of these we feel during a flare up.  For example when I developed fibromyalgia and I didn’t know I had it and I was sure I had another serious problem with my back.  The pain was actually my heightened sensitivity to pain and the fact I was trying to undertake lots of activities such as before I had back surgery.  But when I learnt I had developed fibro I realised that my back did not need further investigation and that I had to learn to pace myself and I understood that my brain was increasing the pain signals through my nervous system instead of in a non fibro sufferer reducing the pain signals.  

An example would be falling and hurting your ankle with a sprain that Fibromyalgia could increase the pain and symptoms such as touch and to feel more like a break.  It took my sprained ankle 2 years to heal instead of a normal 3-9 months, even for a bad sprain!

Plus when you understand how pacing works, you can begin to understand your limits and reduce activities to a level that flare ups are rare and manageable.  Keeping logs and diaries are a great way to help you learn about your condition, body and reduce the boom or bust scenarios.  Please read here for more information. 


The above shows you how boom or bust works and learning to pace activities will help to reduce or even eliminate these.

Now I’m not an expert, I came home yesterday in tears as I pushed myself too hard this week at work.  I called my new manager and asked to come and see me this week as I needed to talk through my new role, his and my expectations and make it clear I will not risk my health for work.  He agreed and seemed generally caring, which is a start.

I have tried to deal with fibromyalgia by popping pain pills but this treatment does not work.  Eventually our brains get used to them and then you have to keep moving onto stronger medications.  I weaned off 5 tablets and now find that I deal with fibro much better by just taking them during flare ups, as they seem to actually work and the rest of the time I use a holistic approach, I’ll give you a brief run down of done of the things I use:-

  • Regular massage
  • Magnesium flakes in my bath
  • Mindfulness and meditation
  • Pacing, spreading out activities with regular rest
  • I use a hydraulic desk and spinal chair at work so I can work standing and sitting
  • Heat, I have hot water bottles everywhere
  • I take a varied amount of natural minerals and vitamins
  • I use positive affirmations all the time, by saying out loud positive things such as I love mornings, I am going to have a great day today
  • I use essential oils in a device click here

I am not sure where you are on your journey with fibromyalgia, but if you understand why you get flare ups and increased pain you can learn to reduce or remove these episodes. 

How can you fix insomnia?

Ha if I knew that I’d be a millionaire!! Now here’s the thing; Fibromyalgia causes insomnia and insomnia is one of many drivers in increasing fibromyalgia symptoms. I once read an article about some controlled tests that were performed on ‘healthy’ volunteers; they were kept awake or continuously awoken over several days and then tested how they felt mentally and physically whilst also performing cognitive tests, all of the volunteers showed symptoms of fibromyalgia, even down to increased levels of pain. 
I go through periods of insomnia and I track my progress with a Fitbit. I actually only used to sleep 3-4 hours a day until I established healthier pre sleep activities and then I increased that average to 5-6 hours, I will go into that in more detail in a second. But then insomnia creeps back in and my average drops back down to 3-4 hours. Read more here 

You’re probably wondering what I did differently to help me sleep? These are what I can remember:-

  • Reduced caffeine intake to 1 cup a day (I’ve gone back to 2is this why I now cannot sleep?)
  • I quit drinking alcohol
  • I never eat within 3 hours of going to sleep
  • I have a warm bath with magnesium flakes every night before bed
  • I take a vitamin super supplement each night that includes melatonin, chamomile and 5htp amongst others
  • I undertake some form of exercise 4/5 times a week either yoga or my power plate, yes even when I feel rubbish, mind over matter
  • I practise meditation daily, especially at night (now this has most definitely slipped off my radar just before bed, I need to start doing it before bed again)
  • I wear UV glasses when it gets dark to cut out the blue light from the tv and my phone
  • I drink 2-3 litres of water a day but never 90 minutes before bed
  • My bedroom is kept cool at around 19 degrees maximum
  • My bedroom is completely dark with blackout curtains
  • I wear earplugs for complete quiet
  • I quit taking medication every night for insomnia
  • Reduced consumption of chemicals by using organic
  • Reduced consumption of non natural foods, do not underestimate the effects of a poor diet!!

Now around 3 weeks ago I started to feel ill like I had some kind of virus, it wasn’t a cold or flu (thankfully my immune system always fights these off plus I take a super supplements with 21 different vitamins in). Ever since I had this short lasting virus I have not slept for more than 2-4 hours a night and this has set off many fibromyalgia symptoms;

  • Headaches
  • Restless legs
  • Nerve pain
  • Muscle aches and stiffness (like having the flu coming on)
  • Mood swings
  • IBS
  • Irritability
  • Pins and needles or burning on my skin all over
  • Cognitive issues; memory and concentration issues
  • And one of the worst; fatigue which I feel like I’ve got a constant hangover, coming down with flu type feeling
  • Depression

All this just because I cannot sleep!!

It’s a vicious circle as sleep deprivation increases symptoms of fibromyalgia and fibromyalgia causes insomnia. Due to having a near miss in my car I even asked my doctor for a couple of sleeping tablets, but they did not work 😂, I have to laugh.

So what should I do, give in, quit, start feeling sorry for myself? No, that won’t solve anything. I will tackle this problem like I do every other problem, by being practical. The solution does NOT lie in regular meds again, it lies within me. I just need to figure this out. I’m going to cut down my caffeine to one a day at 6.30am, stop watching tv half hour before bed and do some meditation/mindfulness yoga and when I cannot sleep I am going to start getting up and meditating rather than tossing and turning in bed all night.

The hardest thing about having insomnia is not being able to sleep in my own bed as I keep my husband awake 😦

If you read this and can relate don’t give up, don’t resort to meds as that’s just a bandaid, use them sparingly and take a long look at your daily activities and lifestyle as the key to removing insomnia will be in there somewhere.

Learnt to love Fibromyalgia 

I feel like I’ve lost 3 years of my life to being ill; gave up my job and chosen career path, stopped my hobbies, quit lifting weights, lots of friends lost, nights out cancelled, holidays abroad cancelled, hypnotherapy business closed.

It is easy to read that and get depressed but what’s the point, seriously what’s the point?  I can’t change anything in the past, I can only shape the present.  I’m not even worrying about the future either, I really don’t care that much as I know the plans I make in the present will shape my future, anything I cannot control I’m not even thinking about.

Whilst my husband was in bed New Years Eve with flu I made a pact with my body, no more will I bow down to fibromyalgia, I will learn to love this condition and I will do the things I want to do (within reason) and whilst I was thinking this I realised that there has been some positives in the last 3 years that I would never have been through if I hadn’t have developed this condition; learning to say no to others, putting myself first, letting go off toxic people, moving into a better local job and no more travelling 3/4 days a week.   Practising mindfulness meditation and yoga.  Ditching all my regular medications, eating healthier, quitting regular alcohol drinking, reconnecting with lost friends.  Learning holistic therapies to use on myself.  Recruiting a masseuse for fortnightly treatments.  Finding my super fibromyalgia supplements from USA that have made me feel better than I’ve felt for years!


Our minds always focus on the negatives in a bad situation but if you look hard enough there’s always a positive.  

This year is going to be amazing and I’m going to keep it healthy and make sure I give back my love to my family and friends the support I’ve needed over the past 3 1/2 years since my back operation.

It’s took a year of changes to every aspect of my life to get me here but I have proved that I can learn to love Fibromyalgia ❤️