I have to be honest fatigue and anxiety are two of my most crippling symptoms at the moment. I have had a busy weekend with a motorbike lesson Saturday morning, loading up the campervan for camping and unloading on return then I went out on my motorbike 3 miles to watch a stunt show for 2 hours. Monday I felt great, Tuesday and Wednesday morning I have felt by far the worse I have ever felt in terms of fatigue.
I open my eyes and the stiffness and pain is extreme I feel it in every part of my body all over my skin, like I’m severely bruised, I cry lots more out of frustration I guess. I struggle out of bed and it takes me between 90-120 minutes of waiting for my tramadoland the caffeine from my coffee to kick in. I hate this feeling more than anything it’s horrible, getting into work is a massive struggle, today I have booked a days annual leave as I don’t even have the energy to get up. I’ve been laid in bed for 3 hours now!!
Fatigue is a difficult one it’s all about pacing and you have to keep a diary of activities to learn how much you can do and when to rest to reduce fatigue flare ups, fatigue never kicks in straight away it takes my body 48-72 hours for it to kick in but when it does it floors me. It’s a frustrating experience as I really had fun with my family this weekend and now I am paying the price.
Tips for controlling fatigue which I do not always follow hence why I am feeling ill today:-
- Learn pacing; this means stretching out activities over a longer period. I’ll give you an example I used to hoover the whole house in one go, now I have a lightweight rechargeable hoover and I do a room a night.
- Find easier ways to do things. All my shopping is done online and delivered, any other essentials are fetched by my daughter and husband
- Hire a cleaner or ask a family member or friend to help. I am a proper clean freak so clutter and dirt stress me out so I pay my daughter a wage to clean.
- Find ways to rest and this does not necessarily mean go to sleep, napping messes up your sleep health. It means finding a way to relax which could be watching tv, reading a book, doing some crafts, sitting in the sun, etc etc
- Meditate, get on the sofa and put on a YouTube and look up mindfulness meditation close your eyes, switch off your phone and follow the instructions.
- If you are feeling down then have a good cry and get it out your system then move on, it’s my favourite way of getting all the frustration out! Don’t let it ruin your day!
- Stay positive, focus on what you have and what you can do not what you can’t. I know this is hard but life is beautiful and when fatigue kicks in it’s overwhelming but we all have great things in our life even if it’s just the blue sky and sun today.
- Keep telling yourself it will pass because it always does. If needs be write it down ‘it will pass’ on an A4 sheet of paper and stick it on the wall to remind you.
- Increase your painkillers to help you get through the flare up but remember to reduce back down or you could end up on a slippery slope of ever increasing pain meds.
- Take a hot bath, not a shower and use magnesium flakes as they soak in your skin, at first you will itch and go redbut as your magnesium levels increase in your body this will stop.
- Eat healthier than ever before, poor diet choices will increase fatigue.
- Do not drink any alcohol as this will make you feel worse!! The alcohol turns to sugar and is toxic to your liver it will only prolong the fatigue.
- Get a massage it releases and removes toxins in the body and you will feel the benefit later on in the day.
- Go and sit in the sun and top up your vitamin D levels naturally.
- Remember your vitamins.
- Talk to someone about how you feel, sharing your experience helps. Why do you think I have my fibro page I need you more than you need me!!
Take a look at this site it’s got great tips and logs to help you plan living with fibro here